Hans van den Heuvel

Multimedia Appendix 1– client-centered-care questionnaire (CCCQ) Participants n=52 1.1 I can tell that the carers take my personal wishes into account. 1 – strongly disagree Number (%) 0 (0%) 2 – disagree Number (%) 0 (0%) 3 – neither disagree nor agree Number (%) 6 (11.5%) 4 – agree Number (%) 34 (65.4%) 46 (88,5%) 5 - strongly agree Number (%) 12 (23.1%) 1.2 I can tell that the carers really listen to me. 1 – strongly disagree Number (%) 2 (3.8%) 2 – disagree Number (%) 0 (0%) 3 – neither disagree nor agree Number (%) 0 (0%) 4 – agree Number (%) 38 (73.1%) 50 (96,1%) 5 - strongly agree Number (%) 12 (23.1%) 1.3 I can tell that the carers take into account what I tell them. 1 – strongly disagree Number (%) 1 (1.9%) 2 – disagree Number (%) 3 (5.8%) 3 – neither disagree nor agree Number (%) 1 (1.9%) 4 – agree Number (%) 33 (64.5%) 47 (90,4%) 5 - strongly agree Number (%) 14 (26.9%) 1.4 I get enough opportuniy to say what kind of care I need. 1 – strongly disagree Number (%) 0 (0%) 2 – disagree Number (%) 1 (1.9%) 3 – neither disagree nor agree Number (%) 4 (7.7%) 4 – agree Number (%) 32 (61,5%) 47 (90,4%) 5 - strongly agree Number (%) 15 (28.8%) 1.5 I can tell that the carers respect my decision even though I disagree with them. 1 – strongly disagree Number (%) 0 (0%) 2 – disagree Number (%) 0 (0%) 3 – neither disagree nor agree Number (%) 22 (42.3%) 4 – agree Number (%) 22 (42.3%) 30 (57,7%) 5 - strongly agree Number (%) 8 (15.4%) 1.6 In my opinion the carers are clear about what they are able and allowed to provide. 1 – strongly disagree Number (%) 0 (0%) 2 – disagree Number (%) 1 (1.9%) 3 – neither disagree nor agree Number (%) 7 (13.5%) 4 – agree Number (%) 30 (57.7%) 44 (84,6%) 5 - strongly agree Number (%) 14 (26.9%) 1.7 In my opinion the carers are sometimes too quick to say that something is not possible. 1 – strongly agree Number (%) 1 (1.9%) 2 – agree Number (%) 6 (11.5%) 3 – neither disagree nor agree Number (%) 15 (28.8%) 4 – disagree Number (%) 20 (38.5%) 30 (57,7%) 5 - strongly disagree Number (%) 10 (19.2%) 1.8 I’m given enough opportunity to use my own expertise and experience with respect to the care I need. 1 – strongly disagree Number (%) 0 (0%) 2 – disagree Number (%) 2 (3.8%) 3 – neither disagree nor agree Number (%) 10 (19.2%) 118