Ietje Perfors

72 Chapter 3 Table 2. Continued. Reference Primary and secondary outcome measures (instrument used). Timing of measurement Nielsen et al. (2003) 16 Kousgaard et al. (2003) 17 Primary - Patient attitude towards the healthcare system: intersectoral cooperation and ‘not feeling left in limbo’ (SDQ) - Patient GP global assessment (one question) - Quality of life (EORTC QLQ-C30) - Performance status of function and self-care (ECOG) - Healthcare use: GP consultations (patient and GP reported SDQ) - GP assessment (SDQ) of: • Discharge information value • Own knowledge (patients confidence) • Own wishes to receive further information • Intersectoral cooperation Measurements Patient: - First measurement ‘Soon after the introduction of the intervention.’(0 month) - 6 months GP assessment: timing unknown Abbreviations: CA; clinically anxious, CI; Confidence Interval, CT; chemotherapy, Dan- PEP; Danish Patients Evaluate General Practice, ECOG; Eastern Cooperative Oncology Group, EORTC QLQ-C30; European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30, FACT-G; Functional Assessment of Cancer Therapy – General, GP; General Practitioner, HADS; Hospital Anxiety and Depression Scale, Mini- MAC; Mini Mental Adjustment to Cancer scale, NA-ACP; Needs Assessment for Advanced Cancer Patient, NS; not significant no p-value or CI was provided nor could be calculated, OR adj; Odds ratio adjusted for confounders sex and age, PACIC; Patient Assessment of Chronic Illness Care, PES; Patient Empowerment Scale, PHR; Patient Held Record, POMS; Profile of Mood States, SD; Standard Deviation, SDQ; Self Developed Questionnaire, SCNS- SF34; Supportive Care Needs Survey Short Form 34, UC; Usual Care, vs; versus, χ ²; Chi- square distribution, y; years of age.