Ietje Perfors

95 Employment is measured by the Productivity Cost Questionnaire of the institute for Medical Technology Assessment (iMTA PCQ), which contains 12 items. 23 Patient Empowerment will be measured based on two elements of empowerment, i.e. self-efficacy and Mastery. Self-efficacy is measured with the General Self-Efficacy Scale (GSE), a questionnaire with 10-hypothesises to assess optimistic self-beliefs to cope with a variety of difficult demands in life. 24 Mastery level will be measured with the Pearlin Mastery Scale, a 7-items questionnaire designed to measure self-concept and references the extent to which individuals perceive themselves in control of forces that significantly impact their lives. Shared Decision Making will be measured using two questionnaires. 25 The Shared Decision Making Questionnaire (SDM-Q-9) contains 9 items and assesses the effectiveness of interventions aimed at the implementation of SDM. 26 We added a question in order to evaluate the roll of the GP within this process, and the Perceived Efficacy in Patient-Physician Interactions (PEPPI), which contains 10 items. 27 Mental health is assessed by the RAND Mental Health Inventory (MHI-5), which contains 5 items and measures mental health. 28 Finally, satisfaction with informationwill bemeasured by the European Organisation for Research and Treatment of Cancer Assessment Satisfaction with information (EORTC-info 26), a 27-items cancer specific questionnaire which evaluates the information received by cancer patients. 29 In addition to the iMTAMCQ, several questions are added for the qualitative evaluation of online tools. Data collection Data will be collected at baseline (T0), after two weeks (T1) and every three months (T2, T3, T4), up to 12 months after the diagnosis (T5) (Figure 2). If primary treatment is already completed before T3 (e.g. for patients with a melanoma who only undergo surgery), patients receive the questionnaires fromT3 directly and after 3 months the questionnaires of T5. The remaining questionnaires will be omitted. Questionnaires will be sent by email to the participant. When the participant does not fill in the questionnaires within one week, the electronic systems sends the participants one reminder. If this does not lead to completing the missing questionnaire, the researcher contacts the participant by phone for a final request to complete the questionnaire. 4