Dunja Dreesens

118 SDM: role of doctor - SDM = doctor advises - SDM = doctor knows best - SDM = responsibility lies with doctor - SDM = attitude/competence - SDM = gauge opinion of parents/ patient - SDM = ask parents for their perception SDM: role of patient/parents - SDM = initiative with parents - Role of patient/parents in SDM - SDM contributes to patient’s autonomy - Should parents know everything (about CPG) - SDM = stress of choice for patient/parents SDM and MDC - SDM = include parents’ viewpoint in MDM SDM and practice - SDM in practice - SDM = not easy in practice - SDM differs per phase - Differences in palliative care paths - When to apply SDM - How to apply SDM - Limited choice in child oncology/IC/Neonatal care - SDM = not every detail - SDM = always involve parents/patient - SDM = importance of parental involvement - SDM = dependent on parents’ capability - SDM depends on equality of knowledge - SDM = dependent on type of parents - SDM should be included in training (explanation: in order to equip doctors to implement/practice SDM, it should become part of their training) SDM: assessment - Importance of SDM - SDM = must/always (ethical/principle) - SDM = common sense - Usefulness/purpose of SDM (compliance, mastery) SDM: limitation - SDM obstacles - SDM and time - SDM time as limitation - Complexity of SDM practice (surrogate parents) - SDM: guideline - Need of CPG on SDM or an SDM CPG SDM in CPG positive - CPG can improve SDM SDM in CPG negative - CPG hampers SDM - Little room for SDM in CPGs - Doubts regarding effectiveness of SDM in CPG on SDM in practice - SDM in CPG does not contribute to SDM attitude SDM: choice of words in CPG SDM case - SDM case description positive - SDM case description negative SDM recommendation - Preference for SDM recommendation - Preference for short recommendation - SDM recommendation leads to SDM - Relation between SDM recommendation and CPG size - Disadvantage of SDM recommendation - Preference for type of recommendation depends on situation CPG Palliative care for children (PCFC) CPG PCFC: use - Familiar with CPG PCFC - Familiar with “entire” CPG PCFC - Familiar with parts of CPG PCFC - Familiar with existence of CPG PCFC (e.g. through cooperation) - Not familiar with CPG content - CPG PCFC use - CPG PCFC not used - CPG PCFC not read - Intention to use CPG PCFC - CPG PCFC as knowledge instrument - Relation between CPG use/introduction and release date - CPG PCFC as reference work - Importance of acting in practice ≠ CPG - Amount of clinician’s expertise in regard to need of using CPG - Match between CPG PCFC and daily practice CPG PCFC: assessment - Positive existence of CPG PCFC - CPG PCFC description - CPG PCFC usefulness - CPG PCFC usefulness negative - CPG PCFC size - CPG PCFC = illegible - CPG PCFC not applicable to subspecialty - CPG PCFC not usable - CPG PCFC in digital format only is not useful - Ease of CPG access/location - CPG disadvantage: recommendation “states the obvious” - CPG PCfC searchability - Importance of CPG summary (usefulness/ applicability thanks to summary) - CPG PCFC invites reflection Chapter 6 (Continued) Appendix C - Code book final - English