Dunja Dreesens

180 than laying out a strictly prescribed series of ordered steps. In the event that the development of the knowledge tool (patient information on a guideline or a patient decision aid based on a specific guideline recommendation) is part of a guideline project, the development team will ideally be commissioned by the guideline working group itself. Table 2: The similarities and differences between the eight development steps for a) patient information on a guideline and b) a patient decision aid (PDA) connected to specific guideline recommendation(s) Typical of patient information on a guideline(s) DEVELOPMENT STEPS Typical of PDA connected to specific recommendation(s) 1 TEAM Chose members and define tasks Provides an overview of the entire guideline (module) 2 SCOPE Establish provisional scope Create inventory of existing versions Concerns one or several specific recommendations. Not a one-to-one application of guideline. Information needs may also differ from those mentioned in the guideline. 3 NEEDS Identify information needs Establish attributes for consideration in decision-making. Needs of care providers as well. Purposeful selection of guideline recommendations. 4 CONTENT Content and form International criteria are in place; IPDAS (Int. Pat. Dec. Aids standards) 5 TEST Testing the concept 6 FINALISING Finalising and obtaining approval 7 DISSEMINATION Dissemination and application 8 OWNERSHIP Management and revision For patient versions of guidelines, the patients’ information needs together with the subject of the guideline will form the basis for the content of the patient version; the guideline itself should be the most important source of information. Rather than assuming just one guideline as a starting point, this situation might mean that multiple guidelines will need to be integrated and translated into a single patient information document, as this process will more effectively address the desires and perceptions of the target group. Or, alternatively, it might mean that only a limited number of guideline modules will be applied in creating patient information documents. A need to develop one or more patient decision aids is especially indicated when one or more of the guideline’s key recommendations are preference-sensitive in nature. Valorisation chapter