Dunja Dreesens

182 4 CONTENT For both type of tools describe: - The target group and medical condition/symptom/healthcare topic. - The guideline(s) serving as the basis (in part) for the creation of the information on evidence, etc. - The source of funding, who has ownership, year of publication and expiry date (if applicable). - The interests of each member of the development group (conflict of interest). Patient information: Describe the guideline recommendations on which patients would want to be informed in terms that a layperson can understand. Mention frequently-used examples of professional jargon so that patients can become familiar with them. The patient information will additionally indicate the following aspects: - Point out where aspects have consciously been omitted and/or emphasis has intentionally shifted (if applicable), as compared to the guideline. PDA: Describe the situation/decision at hand and the relevant recommendation(s) from the guideline, in terms that a layperson would understand. The PDA will describe the following aspects (at minimum): - An explanation that the patient has a choice; that he/she is facing a preference-sensitive decision. - A description of the medical/care options, including the option to wait and see (if applicable) and an explanation of the procedure for each medical/care intervention. - The desired and undesired outcomes (side effects) of the medical or care options, and the burden of treatment. - The likelihood and risks of the outcomes, expressed as numeric data with equal denominator of population in natural frequencies and an identical length of time; preferably displayed in population diagrams; framed both positively and negatively (chances of both survival and fatality, for example); and in the case of risk reduction presented, at minimum, in terms of absolute (and potentially relative) risk reduction. - An evidence table in which the medical/care options are summarised and compared in terms of a few key aspects. - Ensure explicit mention of the attributes found in step 3 that are important for patients to keep in mind as they consider their options and elicit their values. These attributes must contribute to the key aspects described in the evidence table. Valorisation chapter