Dunja Dreesens

34 60 Choosing better.nl Decision aid ≈ p n/a ✗ ✓ ? 61 Guideline ≈ c b ✗ ✓ ? 62 Health and Youth Care Inspectorate Field norm ✗ b b ✗ ✓ ? 63 IVM 1 Medicine Balance sheet ✓ c mu ✗ ✗ ✗ 64 Coordination Platform Care Standards Care module ≈ b mu ✓ ✓ ✓ 65 Care standard ✓ b mu ✓ ✓ ✓ 66 SGB 2 ‘GeneesmiddelenBulletin (Drug Bulletin)’ ≈ c mu ✗ ✗ ✗ 67 NKP 3 Clinical pathway ✓ c mu ✗ ? ? Legend table 1 - Definition/description of tool type available on website? No ( ✗ ), yes ( ✓ ), incomplete (≈) - Tool type targeted at which group? Clinician/healthcare professional (c), patient (p) or both (b) - Monodisciplinary (mo), multidisciplinary (mu) tool, both (b) or not applicable (n/a) - Tool types also mentions other target groups? No ( ✗ ), yes ( ✓ ) - Mentioning of patient and/or public involvement in developing the instrument? Yes ( ✓ ), no ( ✗ ), unclear (?) - Authorization or legitimatization process mentioned? Yes ( ✓ ), no ( ✗ ), unclear (?) - Publicly accessible? Limited (≈), yes ( ✓ ) Abbreviations table 1 1 IVM: Institute of Responsible Medicine Use (Instituut Verantwoord Geneesmiddelengebruik) 2 SGB: Foundation Drug Bulletin (Stichting Geneesmiddelen Bulletin) 3 NKP: Clinical Pathway Network (Netwerk Klinische Paden) Of the 67 tool types/names, 33 appeared to refer to unique tool types. ‘Patient translation of guideline’ and ‘patient version of guideline’ were considered similar terms, just as ‘multidisciplinary’, ‘network’ and ‘practice guideline’ were considered to be similar to the ‘plain’ ‘guideline’. To show the abundance of names given to the tool types and possible differences in data extraction, we transported all included tools to the final table for data extraction (see table 1) describing their characteristics. Target users and interrelatedness of tools Despite the increased attention for patient engagement in decision-making and tools enabling this, it appeared that most tool types (n=34) were primarily aimed at healthcare professionals; 14 were aimed solely at patients; and 18 at both. One tool type was targeted at a different user group: helping employers deal with employees who have health problems. Six tool types also mentioned other target users, such as governments and healthcare insurers. Flow charts, summaries and patient versions of CPGs are generally regarded as derivatives of guidelines (97). We consider decision aids and CPGs to be linked as well, since patient decision aids are mostly based, or should be based on CPGs (98). The criteria of Option Grid TM even required these to be based on clinical practice guidelines (99). However, interpretations differ among organisations and expected links are missing. For instance, the Netherlands Society of Occupational Medicine (NVAB) and the Royal Dutch Society for Physical Therapy do not regard flow charts and guideline summaries as knowledge tools in themselves – to be used Chapter 2

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