Dunja Dreesens

74 parts: one stating the four purposes of the tools (see Table 3) and the other the core elements (see Table 3). Table 3: Draft framework part 1: purposes of patient directed knowledge tools PATIENT-DIRECTED KNOWLEDGE TOOL TYPES Patient information and educational material Decision tree Independent / pre- & post-encounter PDA Patient (version of) CPG Encounter PDA PURPOSE To inform or to educate provide information on the disease/complaint; what its treatment/care options are; how it can affect the patient’s life; what the patient can do herself/himself to cope/deal with the disease/complaint and what are the expected harms and benefits of treatment. + + + + To provide recommendation(s) summarize evidence & provides recommendation(s) - e.g. stemming from guidelines - regarding care option(s). + + To support decision-making (and not decision making together with a healthcare professional): provide information on option(s) (including doing nothing, watchful waiting); harms and benefits, risks thereof; elicit values, preferences and contemplation so that patients can choose the treatment/care or option that suits best. Possibly indicate which % of patients in a similar situation chose which option. + + + + To engage in SDM invite, stimulate or instruct the patient to decide together with healthcare provider on treatment/care. + Legend of table 3: + knowledge tool serves purpose ✓ necessary +/- possibly O Not typical P Present ? Not known (yet) 1 P (in Netherlands only) 2 P (in USA only) Abbreviations: CPG clinical practice guideline PDA patient decision aid DM decision making SDM shared decision making GRADE grading of recommendations assessment, development and evaluation Chapter 4