Dunja Dreesens

83 Annex D – Tool types and definitions used at the start of the meeting In a Delphi study in the Netherlands an expert panel reached consensus on the selection and definitions of a core set of knowledge and decision support tools primarily used in the care process by patient and / or professional (in or outside consultation). In the grey rows the tool types that were included during the invitational. TOOL TYPE DEFINITION IN/ EXCLUDED Clinical practice guideline Recommendations for a specific (health) care issue based on 1) a systematic summary of scientific research, 2) considerations of the advantages and disadvantages of various care options and 3) the knowledge and experiences of patients and providers; supports decision-making in the care process and is aimed at safeguarding and improving the quality of life and care Included (as patient version of guideline) (1) Decision tree/flow chart Logically structured visualization of possibilities in a (health) care issue with associated outcomes, opportunities, risks and decision points; offers care providers and patients insight into the relevant care policies and supports decision making Included (2) Summary (of guideline) Concise overview of the guideline providing main conclusions and recommendations in clear and simple language; can be applied in practice independently from the guideline; intended for both care providers and patients Excluded Protocol Instruction derived from a guideline, indicating how care providers should act in daily practice, within the restraints of specific local circumstances Excluded Patient decision aid (PDA) /support tool Supporting information and answers to frequently asked questions for patients when choosing, with their care providers, from different options – including the option to forgo care – in areas such as diagnostics, treatment, screening, counselling and aftercare; discusses the possible outcomes and effects of each option – desirable or otherwise – their likelihood to occur; helps patients weigh up their options based on their own values, standards and personal circumstances Included – and split into two: encounter PDA (3) and independent PDA (4) Patient / client information Explanation of a specific condition or (health) care issue based on a guideline; made available to patients and their next of kin; provides information on available care choices and the care they can expect from the care process Included (5) Viewpoint Rules of conduct for a topical and/or delicate (health) care issue; drawn up on a fast-track, ad hoc basis by a professional or scientific association in collaboration with patients; provides guidance for care providers and patients when a guideline is not yet available Excluded Care pathway Guideline-based description of the shared decision-making in the care setting regarding the (health) care provided to a patient with a specific care need; intended for care providers; aimed at delivering optimal care, tailored to the needs of the specific patient Excluded Quality standard* Description of good care for a specific health-related theme in accordance with the Dutch National Health Care Institute’s assessment framework; helps to improve and ensure quality of life and care; intended for guideline developers Excluded Care standard* Description of the organization of multidisciplinary care – including prevention – for a particular care issue; based on scientifically substantiated topical insights; may indicate tasks and be drafted from the perspective of the patient; covers in particular support for self-management; may include performance indicators Excluded Care module* Description of an item of care relevant to several care issues; can be part of multiple care standards; brings into line non-disease-specific care in relevant care standards Excluded * Unsure whether these tools are known, and/or used in other countries than the Netherlands Chapter 4