Milea Timbergen

229 Participants differed in age at diagnosis, education level and treatment (Table 2.). None of the participants knew another person with the same condition before the focus group. Most participants were treated surgically (n = 8) or received a conservative management (n = 4). Three participants received a combination of therapies. A minority of the participants sought support in the paramedic field (e.g., physiotherapist, occupational therapist, social worker, and dietician). Table 2. Characteristics of fifteen focus group participants Age in years at time of focus group Age in years at time of diagnosis Median (range) years Median (range) years 46 (25-75) 43 (16-75) Number of patients (%) Sex Male Female 9 (60%) 6 (40%) Marital status Single Married Partnership Windowed Divorced 3 (20%) 9 (60%) 2 (13%) 0 (0%) 1 (7%) Nationality Dutch Other 14 (93%) 1 (7%) Highest completed education Elementary education Secondary education Middle-level applied education. Higher professional education Scientific education (university) Missing value 1 (7%) 2 (13%) 3 (20%) 6 (40%) 1 (7%) 2 (13%) Current paid employment Yes No Retired 8 (53%) 5 (33%) 2 (13%) Familiar with DTF before diagnosis Yes No 0 (0%) 15 (100%) Location of DTF Head / neck Upper extremity / shoulder Thoracic wall Abdominal wall Back Retroperitoneal / intra-abdominal Hip / pelvis/ gluteal region Lower extremity 1 (7%) 2 (13%) 0 (0%) 4 (27%) 1 (7%) 2 (13%) 2 (13%) 3 (20%) Received treatment(s) Conservative management Surgery Radiation therapy Systemic therapy Combination of therapies a 4 (27%) 8 (53%) 0 (0%) 0 (0%) 3 (20%) 8