Milea Timbergen

237 The results of the systematic literature review and the focus group sessions will be used to create a provisional list of issues which will be ranked by both patients and healthcare professionals for their relevance. Next, an item list will be created which will form the basis of the DTF specific tool. This tool could complement the EORTC QLQ-C30 questionnaire with questions capturing issues raised from the focus groups such as concerns about recurrences and emotional or psychological problems and, site specific issues (i.e., extremity, abdominal wall etc.). This questionnaire is much needed in order to understand effects of DTF and its treatment on patient reported outcomes and provide support for patients who experience problems regarding physical, emotional, social and psychological well-being. Also, knowledge about HRQoL-outcomes can be used for informed decision making during the diagnosis and treatment trajectory of this patient group. Conclusions A DTF-specific tool and consensus regarding the preferred measurement tool for measuring HRQoL in DTF patients is lacking in the literature. Used questionnaires either focus on single items, excluding possible items of significance, or are too generic. Existing questionnaires could be complemented with questions regarding key HRQoL-issues, identified during the focus group sessions, which DTF patients experience in various HRQoL-domains. This DTF-specific tool, validated in a large population study, would provide guidance for clinical practice, can compare treatment effects on HRQoL and raise awareness of the impact of DTF on patients’ life. 8