Milea Timbergen

240 19 . Bertani E, Chiappa A, Testori A, Mazzarol G, Biffi R, Martella S, et al. Desmoid tumors of the anterior abdominal wall: Results from a monocentric surgical experience and review of the literature. Annals of Surgical Oncology. 2009;16(6):1642-1649. 20 . Kasper B, Baumgarten C, Garcia J, Bonvalot S, Haas R, Haller F, et al. An update on the management of sporadic desmoid-type fibromatosis: a European Consensus Initiative between Sarcoma PAtients EuroNet (SPAEN) and European Organization for Research and Treatment of Cancer (EORTC)/Soft Tissue and Bone Sarcoma Group (STBSG). Ann Oncol. 2017;28(10):2399-2408. 21 . Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. J Eval Clin Pract. 2006;12(5):559-568. 22 . Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. International Journal of Surgery. 2010;8(5):336-341. 23 . Husson O, Younger E, Dunlop A, Dean L, Strauss DC, Benson C, et al. Desmoid fibromatosis through the patients’ eyes: time to change the focus and organisation of care? Support Care Cancer. 2018;27(3):965-980. 24 . Engelhardt TO, Jeschke J, Piza-Katzer H. About the self-reported quality of life after amputation of the hand in patients with upper extremity tumors. Handchirurgie Mikrochirurgie Plastische Chirurgie. 2008;40(1):23-30. 25 . Dhinsa BS, Gregory JJ, Nawabi DH, Khan S, Pollock R, Aston WJ, et al. The outcome of resection of the distal ulna for tumour without soft-tissue or prosthetic reconstruction. Bone Joint J. 2014;96- B(10):1392-1395. 26 . Tang F, Min L, Yin R, Zhang W, Zhou Y, Luo Y, et al. Large desmoid-type fibromatosis of the shoulder girdle: operative approach selection and clinic outcome. International Orthopaedics. 2015;39(2):363-369. 27 . Goubier JN, Teboul F, Oberlin C. Desmoid tumors and brachial plexus. Chir Main. 2003;22(4):203-206. 28 . Gibbons CLMH, Bell RS, Wunder JS, Griffin AM, O’Sullivan B, Catton CN, et al. Function after subtotal scapulectomy for neoplasm of bone and soft tissue. Journal of Bone and Joint Surgery - Series B. 1998;80(1):38-42. 29 . Kummar S, O’Sullivan Coyne G, Do KT, Turkbey B, Meltzer PS, Polley E, et al. Clinical Activity of the gamma-Secretase Inhibitor PF-03084014 in Adults With Desmoid Tumors (Aggressive Fibromatosis). J Clin Oncol. 2017;35(14):1561-1569. 30 . Catton CN, O’Sullivan B, Bell R, Cummings B, Fornasier V, Panzarella T. Aggressive fibromatosis: optimisation of local management with a retrospective failure analysis. Radiother Oncol. 1995;34(1):17-22. 31 . Ghanouni P, Dobrotwir A, Bazzocchi A, Bucknor M, Bitton R, Rosenberg J, et al. Magnetic resonance- guided focused ultrasound treatment of extra-abdominal desmoid tumors: a retrospective multicenter study. Eur Radiol. 2017;27(2):732-740. 32 . Fiore M, Colombo C, Radaelli S, Prestianni P, Sanfilippo R, Morosi C, et al. Activity of toremifene in sporadic desmoid-type fibromatosis. Journal of Clinical Oncology. 2011;29(15). 33 . Hoos A, Lewis JJ, Urist MJ, Shaha AR, Hawkins WG, Shah JP, et al. Desmoid tumors of the head and neck--a clinical study of a rare entity. Head and Neck. 2000:814-821. 34 . Stoeckle E, Coindre JM, Longy M, Bui Nguyen Binh M, Kantor G, Kind M, et al. A critical analysis of treatment strategies in desmoid tumours: a review of a series of 106 cases. European Journal of Surgical Oncology. 2009;35(2):129-134. 35 . Al-Otaibi ML, Turcotte RE, Hings I, Beaudet J, Isler M, Nahal A, et al. Low-dose chemotherapy for extra-abdominal desmoid tumor. Saudi Med J. 2008;29(12):1730-1734. 36 . Beaton DE, Katz JN, Fossel AH, Wright JG, Tarasuk V, Bombardier C. Measuring the whole or the parts? Validity, reliability, and responsiveness of the Disabilities of the Arm, Shoulder and Hand outcome measure in different regions of the upper extremity. J Hand Ther. 2001;14(2):128-146. 37 . Hudak PL, Amadio PC, Bombardier C. Development of an upper extremity outcome measure: the DASH (disabilities of the arm, shoulder and hand) [corrected]. The Upper Extremity Collaborative Group (UECG). Am J Ind Med. 1996;29(6):602-608. 8

RkJQdWJsaXNoZXIy ODAyMDc0