Milea Timbergen

251 commonly localized in the extremities, flank and chest wall (n = 15, 52%). Nine participants had received active treatment at the time of the questionnaire. The median, self-reported age at diagnosis was 38 years (IQR: 30-48) (Table 1). Sociodemographic characteristics are summarized in Supplemental Table 1. All participants completed the issue list, and sixteen participants ranking their top 10 most relevant issues. Figure 1. Flow diagram of participating patients and health care providers’ responses to this survey 9