Milea Timbergen

252 Table 1. Clinical characteristics of 29 participating patients Total group (%) a Dutch patients (n = 17) British patients (n = 12) Sex Male Female 10 19 (35%) (65%) 5 12 (29%) (71%) 5 7 (42%) (59%) Median age in years at time of questionnaires (IQR) b Median age in years at time of diagnosis (IQR) c 43 38 (36-55) (30-48) 44 (36-55) 38 (30-48) 41 (32-56) 37 (28-50) Tumour localisation Abdominal wall Intra-abdominal Extremity/girdles/chest wall Head/neck/intrathoracic Missing value 2 10 15 1 1 (7%) (35%) (52%) (3%) (3%) 2 8 6 1 0 (12%) (47%) (35%) (6%) (0%) 0 2 9 0 1 (0%) (17%) (75%) (0%) (6%) Recurrent disease Yes No Missing value 6 21 2 (21%) (72%) (7%) 2 15 0 (12%) (88%) (0%) 4 6 2 (33%) (50%) (17%) Received treatment(s) (some patients gave multiple answers) Wait and see Surgery Radiotherapy Chemotherapy Non-steroidal anti- inflammatory drugs Hormonal treatment Pain management Physiotherapy Occupational therapy 21 14 4 5 8 7 9 7 2 12 8 1 1 1 2 0 3 1 9 6 3 4 7 5 9 4 1 Currently receiving any active form of treatment Yes No Missing value 9 19 1 (31%) (66%) (3%) 0 17 0 (0%) (100%) (0%) 9 2 1 (75%) (17%) (8%) Comorbidity (some patients gave multiple answers) No Arthritis or long-term joint problem Asthma or long-term chest problem Diabetes High blood pressure Kidney or liver disease Long-term back problem Long-term mental health problem Long-term neurological problem Physical disability Other d Missing value 11 3 4 1 1 1 6 2 1 2 3 2 6 2 2 1 0 1 3 2 1 1 2 2 5 1 2 0 1 0 3 0 0 1 1 0 a Percentages may not add up to 100% due to rounding up of ; b answered by n = 21 participating patients; c answered by n = 29 participating patients; d Including, digestive problems, coeliac disease lactose intolerance, and iron deficiency 9