Milea Timbergen

268 Supplemental Table 4. (continued) 19 Fatigue 2.3 2.4 0.687 2.0 2.8 0.122 2.1 3.0 0.022 * 20 Downplaying symptoms in order not to upset family/ friends 2.3 2.1 0.721 1.7 3.1 0.002* 2.0 2.3 0.287 21 Reaching a definite diagnosis is time consuming 2.3 2.7 0.115 2.0 2.7 0.152 2.6 2.9 0.448 22 Not having cancer but having the same treatments and side effects 2.3 2.8 0.083 1.5 3.4 0.000* 2.6 3.1 0.183 23 Loss of muscle strength 2.3 2.3 0.718 1.8 3.0 0.009* 1.9 3.3 0.000 * 24 Reassurance because of the benign tumour 2.2 2.5 0.214 2.4 2.0 0.318 2.5 2.6 0.929 25 Feeling exhausted 2.2 2.2 0.923 1.8 2.8 0.042* 2.0 2.8 0.050 26 Problems with playing sports 2.2 2.9 0.019* 2.0 2.5 0.264 2.7 3.3 0.055 27 Feeling like you don’t have a clear prognosis 2.2 2.9 0.015* 1.7 2.9 0.003* 2.7 3.2 0.266 28 Fear of treatment 2.2 2.5 0.235 2.1 2.4 0.444 2.2 3.2 0.013 * 29 Lack of optimal treatment options and/or uncertainty about preferred treatment 2.2 2.8 0.039* 1.8 2.7 0.026* 2.5 3.3 0.055 30 Life changing disease in a negative manner 2.2 2.7 0.021* 1.8 2.7 0.059 2.5 3.2 0.059 31 Problems with sleeping 2.2 2.3 0.528 1.6 3.0 0.003* 2.0 2.9 0.006 * 32 Worries about decreased muscle strength after treatment 2.2 2.3 0.502 1.6 3.0 0.004* 2.0 2.8 0.019 * 33 Not knowing peers with the same disease 2.1 2.6 0.068 1.9 2.5 0.329 2.3 3.3 0.013 * 34 Deterioration in physical fitness 2.1 2.2 0.812 1.7 2.7 0.030* 1.7 3.3 0.000 * 35 Feeling asymmetrical/misshaped 2.1 2.3 0.284 1.8 2.5 0.059 2.0 3.1 0.001 * 36 Limited movement of a limb 2.1 2.9 0.004* 1.6 2.8 0.007* 2.6 3.5 0.013 * 37 Continuous worries about the disease 2.1 2.7 0.005* 1.8 2.5 0.053 2.5 3.1 0.031 * 38 Trying to relieve the burden on family members 2.1 2.2 0.423 1.8 2.4 0.227 2.1 2.6 0.169 39 Feeling disappointed about the course of disease 2.1 2.8 0.012* 1.6 2.8 0.018* 2.5 3.6 0.003 * 40 Doubting the efficacy of treatments 2.0 2.8 0.011* 1.5 2.8 0.008* 2.5 3.4 0.019 * 9