Milea Timbergen

270 Supplemental Table 4. (continued) 63 Forgetfulness 1.7 1.5 0.602 1.5 2.0 0.147 1.2 2.2 0.004* 64 Worries about possible inheritance/passing condition to children 1.7 1.9 0.079 1.4 2.1 0.161 1.6 2.5 0.019* 65 Difficulty explaining the disease to others 1.7 2.6 0.001* 1.3 2.3 0.082 2.5 2.8 0.504 66 Problems with activities of daily living (e.g. washing/ dressing) 1.7 2.4 0.001* 1.4 2.1 0.048* 2.0 3.2 0.001* 67 Change in lifestyle 1.7 2.3 0.034* 1.4 2.3 0.022* 2.1 2.7 0.022* 68 Not being able to enjoy hobbies 1.6 2.5 0.001* 1.3 2.2 0.007* 2.1 3.2 0.147 69 Problems with receiving treatment(s) in a cancer hospital 1.6 2.2 0.014* 1.6 1.7 1.000 2.0 2.7 0.150 70 Not being able to work at all 1.6 2.4 0.000* 1.4 1.9 0.403 2.2 2.9 0.039* 71 Change of hair colour 1.6 1.4 0.245 1.8 1.4 0.941 1.2 1.8 0.031* 72 Feeling that you are standing still in life 1.6 2.4 0.003* 1.4 2.0 0.329 2.1 2.9 0.065 73 Feeling less feminine/feeling less masculine 1.6 2.0 0.027* 1.4 1.9 0.147 1.7 2.7 0.002* 74 Feeling depressed 1.6 2.7 0.001* 1.4 2.0 0.161 2.3 3.5 0.001* 75 Having different recommendations about treatment options given to you 1.6 2.6 0.001* 1.2 2.3 0.047* 2.5 2.7 0.681 76 Fear of dying 1.6 2.1 0.030* 1.6 1.5 0.863 1.7 2.9 0.002* 77 Lack of understanding from family members and/or friends 1.6 2.3 0.002* 1.4 1.9 0.140 2.0 3.0 0.007* 78 Being addicted to pain medication 1.6 2.2 0.003* 1.2 2.2 0.117 1.9 2.8 0.006* 79 Changing jobs 1.5 2.3 0.001* 1.4 1.8 0.285 2.0 3.0 0.017* 80 Feeling depressed 1.5 2.4 0.000* 1.4 1.8 0.134 2.0 3.2 0.001* 81 Problems with getting dressed 1.5 1.8 0.048* 1.1 2.2 0.003* 1.6 2.4 0.007* 82 Breathless on minimal exertion 1.5 1.7 0.286 1.4 1.7 0.505 1.3 2.5 0.000* 83 Being less independent 1.5 2.2 0.001* 1.1 2.1 0.037* 1.9 3.0 0.004* 9