Klaske van Sluis

106 6.6. Acknowledgments 6.6 Acknowledgments Atos Medical AB (Malmö, Sweden) and ReD Associates (Copenhagen, Den- mark) are acknowledged for their work for making the database available to the Netherlands Cancer Institute—Antoni van Leeuwenhoek. The Netherlands Cancer Institute receives a research grant from Atos Medical AB (Malmö, Swe- den), which contributes to the existing infrastructure for quality of life research of the Department of Head and Neck Oncology and Surgery. 6.7 Appendix A Overview of the grouped questionnaire questions per theme. The percentages indicate the proportion of the total number of respondents (n=1705) who re- ported to have experienced the specific issue as stated in the question. 1. r-QoL rating (a) How would you rate your overall health from 0 to 10? 0 means worst imaginable health state, 10 means best imaginable health state. (b) On a scale from 0 to 10, how independent do you feel in completing the activities you want? 0 means the least imaginable independence in completing the activities you want, 10 means the most imaginable independence in completing the activities you want. 2. Esthetic issues (a) I have wished my HME looked more discreet: 54% (b) I have wished my adhesive, button or tube looked more discreet: 52% (c) Covering my stoma with an HME has made me feel more confident: 66% (d) Covering my stoma with a scarf or clothing has made me feel more confident: 38% (e) I would like to try the following product: an HME that is more discreet and that you wear for going out of the house: 70% 3. Experienced limitations in daily activities (a) I have been unable to do my favorite hobbies (e.g. gardening, wood- work, art, etc.): 27% (b) I have been unable to fulfill household or caring tasks anymore, such as cooking, taking care of children/grandchildren, or cleaning: 14% (c) I have avoided traveling or going on trips because of my stoma: 28%