Klaske van Sluis

CHAPTER 6 Interaction of functional and participation issues on quality of life after total laryngectomy Abstract Objective: Total laryngectomy (TL) leads to lifelong physical changes which can lead to functional and participation issues. To assess the relationship be- tween self-reported quality of life and functional and participation issues, a large international online questionnaire was used. Method: A questionnaire was sent out to 8119 recipients of whom 1705 (21%) responded. The questionnaire consisted of 26 questions regarding demographic information, product use of the respondents, experienced overall health and in- dependence, and functional and participation issues. Respondents were grouped based on sex, age, time since TL, educational level, and country of residence. Questions were grouped in one measure of reported quality of life (r-QoL) and seven issue themes (“esthetic issues”, “experienced limitations in daily activi- ties”, “avoiding social activities”, “communication issues”, “experienced vulner- ability due to environmental factors”, “pulmonary issues”, and “sleep issues”) to assess the underlying relations. 0 Appeared as: Leemans, M, van Sluis, K.E., van Son, R.J.J.H., van den Brekel, M.W.M. “Interaction of functional and participation issues on quality of life after total laryngectomy.” Laryngoscope Investigative Otolaryngology 5,3: 453-460, 2020.