Mariken Stegmann
Discussion In the two‐round Delphi process, GPs, medical specialists, and patient representatives reached consensus on lists for the most relevant items in correspondence between primary and secondary care. It was agreed that referral letters should contain medical facts and information about the current problem, but that a detailed description of the physical examination and investigation findings was not necessary. Information about social context, diagnosis and treatment to date was considered unnecessary. It was considered that the specialist letters should contain the same medical facts as the referral letters. Also, it was agreed that diagnosis and treatment should be described in detail, and that items such as “what the patient has been told” and “whom the patient should contact” should be mentioned in the conclusion of the letter. Interestingly, the panels considered that it was important to share information about resuscitation plans in both the referral and specialist letters. Recent studies have indicated that timely discussion of preferences for end‐of‐life care is important to improve quality of life and care in this phase [16]. Our findings are in line with earlier research that doctors take these discussions seriously and need to have clear information to do this effectively [17]. Although outside the scope of this study, it would be interesting to elaborate on the responsibilities in this matter as perceived by GPs, oncology specialists and patients. Concerning the content of specialists’ letters, the most striking requirement was for the inclusion of detailed information, including the rationale, about diagnosis and treatment. Earlier research by our group showed that detailed information about diagnosis is often available in correspondence, but that key information about possible treatment options and the justification is often lacking [14]. Similarly, it is typically the case that no explicit information is given about whether the treatment is being done with palliative or curative intent [14]. This is important because GPs are not only involved in providing care for patients during and after cancer treatment [6,7] but also because they are expected to be formally involved in that care [9]. After a patient has visited an oncology specialist, the GP is able to answer questions that arise and to discuss the diagnosis and the treatment options after the patient has digested the initial information. In this way, GPs can bridge the gap between the patient and specialist by delivering care close to home, potentially allaying patient distress and possibly even reducing the burden on secondary care. In this study, we also asked the panels to indicate their preferences regarding the use of undefined abbreviations in correspondence. We previously reported that abbreviations are common in medical practice (e.g., "BP" for "blood pressure" or "abd." for "abdomen") [14]. However, some medical abbreviations can have different meanings depending on the context and specialism (e.g., "OAC" for both "oral anti‐conceptive" and "oral anti‐ coagulant") and may cause confusion [18]. To ensure mutual understanding, abbreviations should be avoided, even if their meaning is customary and obvious to the writer. Although the study was performed in the Netherlands, we think that the results may also be of interest to doctors in other healthcare systems. The care for cancer patients often involves several doctors and it is important for them to share all important information. Besides, our results have the potential to inform medical training, they can be used to develop guidelines and they can help develop formats for letters generated from electronic patient files. 7 89 Delphi consensus study of correspondence
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