Sonja Mensch

139 General discussion would like to see their child live a full life and that includes their life after the age of 18 years. However, by limiting available care after they reach adulthood, this wish of parents will not be fulfilled. In my opinion a highly unethical issue. Take home messages - Movakic has adequate feasibility, reliability, validity and responsiveness and can be used in clinical practice of the physiotherapist. - Training in the use of Movakic is required for valid objective evaluation. - Objective evaluation of treatment effects in this vulnerable group continues to be complex. - Evidence based practice in this group should be replaced by practice based evidence. - Although problems in motor abilities are not the most important aspect children with SMD have to deal with, using motor abilities, necessary for daily functioning, should be stimulated in order to maximize various domains in quality of life.