Sonja Mensch

18 Chapter 1 Mergler, S., de Man, S. A., Boot, A. M., Heus, K. G., Huijbers, W. A., van Rijn, R. R., Penning, C., & Evenhuis, H. M. (2016). Automated radiogrammetry is a feasible method for measuring bone quality and bone maturation in severely disabled children. Pediatric Radiology, 46 (7), 1017- 1022. Mergler, S., Evenhuis, H. M., Boot, A. M., De Man, S. A., Bindels-De Heus, K. G., Huijbers, W. A., & Penning, C. (2009). Epidemiology of low bone mineral density and fractures in children with severe cerebral palsy: a systematic review. Developmental Medicine & Child Neurology, 51 (10), 773-778. Mergler, S., Rieken, R., Tibboel, D., Evenhuis, H. M., Rijn van, R. R., & Penning, C. (2012). Lumbar spine and total-body dual-energy X-ray absorptiometry in children with severe neurological impairment and intellectual disability: a pilot study of artefacts and disrupting factors. Pediatric Radiology, 42 (5), 574-583. Munde, V., & Vlaskamp, C. (2015). Initiation of activities and alertness in individuals with profound intellectual and multiple disabilities. J Intellect Disabil Res, 59 (3), 284-292. Nakken, H., & den Ouden, W. J. (1985). Research on a psychomotor program for children with severe motor or multiple disabilities. International Journal of Rehabilitation Research, 8 (1), 47- 60. Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39 (4), 214-223. Palisano, R. J., Rosenbaum, P. L., Bartlett, D. J., & Livingston, M. H. (2007). Gross Motor Function Classification System Expanded and Revised (GMFCS-E&R). Hamilton, Canada: CanChild Centre for Childhood Disability Research, McMaster University. Paul, L. K., Brown, W. S., Adolphs, R., Tyszka, J. M., Richards, L. J., Mukherjee, P., & Sherr, E. H. (2007). Agenesis of the corpus callosum: genetic, developmental and functional aspects of connectivity. Nature Reviews Neuroscience, 8 (4), 287-299. Prader-willi syndrome foundation (Stichting patientenorganisatie Prader-Willi Syndroom Nederland). (2016). Retrieved from http://stichtingpws.nl/ Proesmans, M., Vreys, M., Huenaerts, E., Haest, E., Coremans, S., Vermeulen, F., & Feys, H. (2015). Respiratory morbidity in children with profound intellectual and multiple disability. Pediatric Pulmonology, 50 (10), 1033-1038. Putten van der, A., Vlaskamp, C., Reynders, K., & Nakken, H. (2005). Movement skill assessment in children with profound multiple disabilities: a psychometric analysis of the top down motor milestone test. Clinical Rehabilitation, 19 (6), 635-643. Putten van der , A. J., Bossink, L.W. M., Frans, N., Houwen, S., &Vlaskamp, C. (2016). Motor activation in people with profound intellectual and multiple disabilities in daily practice. Journal of Intellectual and Developmental Disability, 42(1), 1-11 . RETT syndrome foundation (Stichting Terre; RETT syndroom Fonds, N. (2012). Retrieved from http://stichtingterre.nl/rett-syndroom/