Sonja Mensch

68 Chapter 3 Main, M., Kairon, H., Mercuri, E., & Muntoni, F. (2003). The Hammersmith functional motor scale for children with spinal muscular atrophy: a scale to test ability andmonitor progress in children with limited ambulation. European Journal of Paediatric Neurology, 7 (4), 155-159. Mastaglia, B., Toye, C., & Kristjanson, L. J. (2003). Ensuring content validity in instrument development: challenges and innovative approaches. Contemporary Nurse, 14 (3), 281-291. Mensch, S. M., Rameckers, E. A. A., Echteld, M. A., & Evenhuis, H. M. (2015). Instruments for the evaluation of motor abilities for children with severe multiple disabilities: A systematic review of the literature. Research in Developmental Disabilities, 47 , 185-198. Mergler, S., Rieken, R., Tibboel, D., Evenhuis, H. M., Rijn van, R. R., & Penning, C. (2012). Lumbar spine and total-body dual-energy X-ray absorptiometry in children with severe neurological impairment and intellectual disability: a pilot study of artefacts and disrupting factors. Pediatric Radiology, 42 (5), 574-583. Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & Vet de, H. C. W. (2012). COSMIN checklist manual. Amsterdam: EMGO Institute for Health and Care Research. Niewczyk, P. M., & Granger, C. V. (2010). Measuring function in young children with impairments. Pediatric Physical Therapy, 22 (1), 42-51. Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39 (4), 214-223. Palisano, R. J. (1993). Validity of goal attainment scaling in infants with motor delays. Physical Therapy, 73 (10), 651-658; discussion 658-660. Poutney, T. E., Mulchahy, C. M., Clarke, S. M., & Green, E. M. (2004). The Chailey approach to postural management, 2nd edition East Sussex: Chailey Heritage Clinical Services Putten van der, A., Vlaskamp, C., Reynders, K., & Nakken, H. (2005). Movement skill assessment in children with profound multiple disabilities: a psychometric analysis of the top down motor milestone test. Clinical Rehabilitation, 19 (6), 635-643. Rieken, R., Goudoever van, J. B., Schierbeek, H., Willemsen, S. P., Calis, E. A., Tibboel, D., Evenhuis, H. M., & Penning, C. (2011). Measuring body composition and energy expenditure in children with severe neurologic impairment and intellectual disability. American Journal of Clinical Nutrition, 94 (3), 759-766. Russell, D. J., Rosenbaum, P. L., Cadman, D. T., Gowland, C., Hardy, S., & Jarvis, S. (1989). The gross motor function measure: A means to evaluate the effects of physical therapy. Developmental Medicine & Child Neurology, 31 (3), 341-352. Veugelers, R., Benninga, M. A., Calis, E. A., Willemsen, S. P., Evenhuis, H., Tibboel, D., & Penning, C. (2010). Prevalence and clinical presentation of constipation in children with severe generalized cerebral palsy. Developmental Medicine & Child Neurology, 52 (9), e216-221.