15250-m-cuypers

29 Decision role preferences and information satisfaction 2 1. INTRODUCTION Shared decision-making (SDM) is widely recognized as best practice in preference- sensitive treatment decision-making 1-3 . Following the principles of SDM, a clinician shares the best available evidence on the treatment alternatives and the patient receives support in sharing his personal values and preferences 4 . Across several medical conditions it has been found that a large majority of patients (75%) prefers this collaborative or even a more active role, though leaving a substantial proportion of patients (25%) preferring a passive role in treatment decision-making 5 . Some studies with SDM interventions such as decision support tools show improved patient involvement, while other studies show little variability over time, indicating that role preferences could represent an intrinsic personality trait that is consistent over time and situations 1, 6 . Although patients prefer different roles for involvement in treatment decision-making, information provision practices are often standardized for all patients. Whereas the variation in decision-making role preferences has been studied before, its relation with the evaluation of information received has so far remained untested 3, 5, 7, 8 . The present study aims to investigate the association between decision-making role preferences and the evaluation of information received in a sample of low and intermediate risk (stage cT1 and cT2) prostate cancer (Pca) patients. Incidence of low and intermediate risk Pca is growing due to an aging population and increased use of PSA screening 9-11 . Available treatments for low and intermediate risk Pca offer oncologically equivalent outcomes, but come with different treatment side-effects that could have a significant impact on quality of life, emphasizing the need for proper information provision and careful determination of patients’ preferences and characteristics 12, 13 . However, it was found that one in three Pca patients is dissatisfied with information received 14 . Our hypothesis is that patients with a passive role preference require less information than patients with a preference for an active decision-making role. However, for satisfaction with information received we hypothesize that patients with a passive role preference are equally satisfied with information received as they prefer to delegate the final decision in a larger extent to the clinician involved and may have a lower need for information.