15250-m-cuypers

37 Decision role preferences and information satisfaction 2 4. DISCUSSION AND CONCLUSION This study showed that decision-making role preferences are associated with the perceived amount of information, helpfulness and satisfaction with information received. Men with a PDM role preference indicated having received less information, found it less helpful and were less satisfied with the information received. Despite this more negative evaluation, men with a PDM role preference did not differ from the ADM and CDM preference groups in their desire to have received more information. Functional outcomes and symptom burden could not explain the differences between decision-making role preferences. Previous reports that age and education are related to decision-making role preferences were confirmed in our study 5 . Overall, younger and higher educated men more often preferred an ADM role. A PDM role preference was found more often across older and less educated men. Although the response rate in our study was quite good and similar to comparable studies from the PROFILES registry 25, 26 , we observed that non- responders in our study were slightly older compared to responders. It should therefore be taken in consideration that the proportion of men preferring a PDM role is slightly under represented in our sample. It is therefore expected that less non-responders would have further strengthened our findings. Our finding that men with a PDM role preference were generally more negative about information received is surprising as it would be expected from this group to rely less on information provided. Although one in four men with a PDM role preference indicated a desire to have received more information, this is comparable to what was found in men with a preference for an ADM or a CDM role. An earlier study in Pca patients on the information needs of the different decision-making role groups found that different role preference groups require information about the same topics 27 . However, there is also evidence that some patients rely to a greater extent to personal factors –like the opinion and experience of others- than only the information provided when making a treatment decision 28 . It could therefore be that it is not the content or amount of the provided information that is most troublesome for men with a preference for PDM, but that the provided information is not what they primarily need to base their decision on. A previous study on the relation between HRQoL and satisfaction with information received in a similar sample indicated an association between functional outcomes, symptom burden and the evaluation of information received 14 . In the current study these HRQoL outcomes were not able to explain the differences between role preference