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CONTENTS CHAPTER 1 General introduction 7 CHAPTER 2 Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES registry 27 CHAPTER 3 The impact of prostate cancer diagnosis and treatment decision-making on health-related quality of life before treatment onset 47 CHAPTER 4 A global, incremental development method for a web-based prostate cancer treatment decision aid and usability testing in a Dutch clinical setting 65 CHAPTER 5 Impact of a web-based treatment decision aid for early-stage prostate cancer on shared decision-making and health outcomes: Study protocol for a randomized controlled trial 87 CHAPTER 6 Impact of a web-based prostate cancer treatment decision-aid on patient-reported decision process parameters: Results from the Prostate Cancer Patient Centered Care trial 109 CHAPTER 7 Longitudinal regret and patient satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial 131 CHAPTER 8 Oncology providers’ evaluation of the use of a prostate cancer treatment decision aid versus usual information provision: Results from the PCPCC trial 153 CHAPTER 9 Uptake and usage of an online prostate cancer treatment decision aid in Dutch clinical practice: A quantitative analysis from the PCPCC trial 171 CHAPTER 10 Introducing decision aids into routine prostate cancer care in The Netherlands: Implementation and patient evaluations from the multi- regional JIPPA initiative 189 CHAPTER 11 Summary and general discussion 205 APPENDICES Nederlandse samenvatting (Dutch summary) Dankwoord (Acknowledgements) List of publications About the author 229 235 239 241