Maayke Hunfeld

82 Chapter 3 No. of respondents Frequency (%) Poor prognosis 1 (N = 71) PCPC ≥ 3 (moderate overall disability or worse) 8 (11) PCPC ≥ 4 (severe overall disability or worse) 35 (50) PCPC ≥ 5 (death, coma or vegetative state) 17 (24) PCPC difference ≥ 1 2 (3) PCPC difference ≥ 2 11 (15) It depends on treating physician 15 (21) Other 5 (7) Unknown 5 (7) Timing prognosis 1 (N = 71) < 48 hours 6 (8) Day 3 6 (8) Day 4 – 5 11 (15) > 5 days 4 (6) > 14 days 7 (10) Based on individual patient 45 (63) Other Unknown 2 (3) 2 (3) Consequence 1 (N = 71) WLST 39 (55) Intensive care is continued without any restrictions 4 (6) Intensive care support is continued with restrictions 27 (38) There is no standard policy 20 (28) Depends on the parents’ wishes Other 26 (37) 5 (7) Ethicist 1 (N = 71) No 14 (20) Yes, always in case of end-of-life decision making 7 (10) Yes, but it happens on individual basis 50 (70) Table 3a. Practices concerning decision-making: definition, timing and consequence, all responders PCPC= Pediatric Cerebral Performance Category, WLST= withdrawing life-sustaining therapy 1 Multiple answers possible