Maayke Hunfeld

83 Survey neuroprognostication No. of respondents Frequency I (%) Frequency N (%) Poor prognosis 1 (I;N=32) PCPC ≥ 3 (moderate overall disability or worse) 3 (9) 4 (13) (N;N=31) PCPC ≥ 4 (severe overall disability or worse) 16 (50) 17 (55) PCPC ≥ 5 (death, coma or vegetative state) 10 (31) 6 (19) PCPC difference ≥ 1 0 (0) 1 (3) PCPC difference ≥ 2 9 (28) 1 (3) It depends on treating physician 6 (19) 7 (23) Other Unknown 1 (3) 4 (13) 3 (10) 1 (3) Timing prognosis 1 (I;N=32) < 48 hours 1 (3) 2 (6) (N;N=31) Day 3 3 (9) 3 (10) Day 4 – 5 3 (9) 6 (19) > 5 days 2 (6) 2 (6) > 14 days 2 (6) 4 (13) Based on individual patient 22 (69) 20 (65) Other Unknown 2 (6) 1 (3) 0 (0) 1 (3) Consequence 1 (I;N=32) WLST 21 (66) 12 (39) (N;N=31) Intensive care is continued without any restrictions 0 (0) 4 (13) Intensive care support is continued with restrictions 15 (47) 9 (28) There is no standard policy 8 (25) 8 (26) Depends on the parents’ wishes Other 13 (41) 2 (6) 11 (35) 3 (10) Ethicist 1 (I;N=32) No 4 (13) 8 (26) (N;N=31) Yes, always in case of end-of-life decision making 5 (15) 1 (3) Yes, but it happens on individual basis 23 (72) 22 (71) Table 3b. Practices concerning decision-making: definition, timing and consequence; divided into paediatric intensivist and paediatric neurologist I= paediatric intensivist, N= paediatric neurologist, PCPC= Pediatric Cerebral Performance Category, WLST= withdrawing life-sustaining therapy 1 Multiple answers possible. 3