Lorynn Teela

114 Chapter 4 References 1. Santana MJ, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Quality of Life Research. 2014;23(5):1505-13. 2. Bouazza YB, Chiairi I, El Kharbouchi O, De Backer L, Vanhoutte G, Janssens A, et al. Patient-reported outcome measures (PROMs) in the management of lung cancer: A systematic review. Lung Cancer. 2017;113:140-51. 3. Valderas JM, Kotzeva A, Espallargues M, Guyatt G, Ferrans CE, Halyard MY, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. Quality of Life Research. 2008;17(2):179-93. 4. Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. Journal of Evaluation in Clinical Practice. 2006;12(5):559-68. 5. Greenhalgh J, Gooding K, Gibbons E, Dalkin S, Wright J, Valderas J, et al. How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis. Journal of Patient-Reported Outcomes. 2018;2:42. 6. Anthony SJ, Stinson H, Lazor T, Young K, Hundert A, Santana MJ, et al. Patient-reported outcome measures within pediatric solid organ transplantation: A systematic review. Pediatric Transplantation. 2019:e13518. 7. Basch E, Deal AM, Dueck AC, Scher HI, Kris MG, Hudis C, et al. Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment. JAMA. 2017;318(2):197-8. 8. de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care. 2008;31(8):1521-6. 9. Engelen V, Detmar S, Koopman H, Maurice-Stam H, Caron H, Hoogerbrugge P, et al. Reporting healthrelated quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Pediatric Blood & Cancer. 2011;58(5):766-74. 10. Haverman L, Van Rossum MA, Van Veenendaal M, van den Berg JM, Dolman KM, Swart J, et al. Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics. 2013;131(2):533-43. 11. Haverman L, van Oers HA, van Muilekom MM, Grootenhuis MA. Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK. Medical Care. 2019;57 Suppl 5 Suppl 1:S52-S8. 12. Haverman L, van Oers HA, Limperg PF, Hijmans CT, Schepers SA, Sint Nicolaas SM, et al. Implementation of electronic Patient Reported Outcomes in pediatric daily clinical practice: The KLIK experience. Clinical Practice in Pediatric Psychology. 2014;2(1):50-67. 13. Schepers SA, Sint Nicolaas SM, Haverman L, Wensing M, van Meeteren AY, Veening MA, et al. Realworld implementation of electronic patient-reported outcomes in outpatient pediatric cancer care. Psychooncology. 2016;26(7):951-9. 14. Santana MJ, Haverman L, Absolom K, Takeuchi E, Feeny D, Grootenhuis M, et al. Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of Life Research. 2015;24(7):1707-18. 15. van Oers HA, Schepers SA, Grootenhuis MA, Haverman L. Dutch normative data and psychometric properties for the Distress Thermometer for Parents. Quality of Life Research. 2016;26(1):177-82. 16. Haverman L, Grootenhuis MA, Raat H, van Rossum MA, van Dulmen-den Broeder E, Hoppenbrouwers K, et al. Dutch-Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)(R). Quality of Life Research. 2016;25(3):761-5. 17. CBS. The Netherlands leads Europe in internet access. https://www.cbs.nl/en-gb/news/2018/05/thenetherlands-leads-europe-in-internet-access2018 18. Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. 2006;3(2):77-101. 19. Engelen V, Haverman L, Koopman H, Schouten - van Meeteren N, Meijer-van den Bergh E, VrijmoetWiersma J, et al. Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Education and Counseling. 2010;81(2):235-44.

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