126 Chapter 5 have been performed focusing on the experiences of pediatric patients and their parents with using PROMs in daily clinical practice. To be able to optimize and further implement the KLIK PROM portal, it is also necessary to gain understanding of their wishes and needs. Therefore, the aim of this study is to provide more insight into the perspective of patients and parents on the implementation of PROMs in pediatric clinical practice using the KLIK PROM portal. Methods KLIK workflow The KLIK workflow for pediatric patients and parents consists of several steps; (1) creation of a KLIK account by patients/parents, (2) completion of PROMs by patients/ parents before the outpatient consultation, (3) conversion of answers into a KLIK ePROfile, and (4) discussion of the KLIK ePROfile by the clinician during consultation (Fig 1). Design This study is part of a larger participation study where KLIK users’ (patients/parents) opinion was asked about several aspects of health care and the use of the KLIK PROM portal. This sub-study reports on the evaluation of the KLIK PROM portal. A mixed-method design was used where qualitative and quantitative methodologies were combined: (1) focus groups were held with patients and parents and (2) an evaluation questionnaire was sent out to pediatric patients and parents. The Medical Ethics Committee of the Amsterdam University Medical Centers (Amsterdam UMCAMC) approved this study. All participants provided informed consent. Participants Patients (12-19 years) and parents (of children 0-19 years) who consult a pediatric department of the Emma Children’s Hospital Amsterdam UMC that uses KLIK as standard part of care, completed KLIK PROMs at least once (questionnaire) or twice (focus groups), and were part of the ‘KLIK panel’ could participate in this mixedmethod study. Patients with any chronic health condition could participate in this study as the workflow of the KLIK PROM portal is similar for all patient groups. The ‘KLIK panel’ consists of patients and parents that indicated, during registration on the KLIK PROM portal, that they give permission to be invited for research projects. Eligible patients/parents were invited by e-mail to take part in the focus groups
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