128 Chapter 5 Procedure Focus groups Focus groups with patients and parents were held separately and for each focus group inclusion of three to six participants was pursued [32]. Focus groups consisted of a group discussion guided by two moderators (MvM, LT, HvO, or LH). At the start of the focus group, the aim of the study was explained and a short recapitulation of KLIK was provided. Then, to obtain patients’ and parents’ opinion about KLIK, positive and negative experiences with KLIK were discussed using the evaluation technique ‘Complain and Cheer wall’ [33]. Participants were asked to write down their positive experiences on a flip over at one side of the room, what we called the ‘Cheer wall’, and points of improvement on another flip over at the other side of the room, the ‘Complain wall’. Thereafter a group discussion took place and topics on the walls were grouped together into main themes. Duration of each focus group was 60 minutes. All focus groups were audio recorded. Questionnaire The questionnaire (separate version for patients and parents, with minor differences regarding language use–Supplement 1) was developed by five researchers of the KLIK expert team and reviewed by five other researchers and one psychologist. Both versions of the questionnaire consisted of 17 closed questions (response options: three- and fivepoint Likert Scales and Visual Analogue Scales (VAS)) and two mandatory open questions (advantages and disadvantages of KLIK), regarding (1) overall satisfaction with the KLIK PROM portal, (2) completion of PROMs in the KLIK PROM portal, (3) discussing PROMs with the clinician, (4) influence of KLIK on the (preparation of) the consultation, (5) usability of the KLIK PROM portal, and (6) content of PROMs. For three closed questions, an additional mandatory open question was provided, asking about the reason for their answer. Analyses Descriptive analyses were performed using the Statistical Package for Social Sciences (SPSS) version 25.0 to characterize the participants. Regarding the focus groups, all audio recordings were transcribed verbatim and the transcripts were analyzed independently by MvM and LT in MAXQDA (2018) following the thematic analysis in psychology [34]: (1) highlighting relevant parts of the manuscript, (2) organizing data into meaningful groups by generating initial codes, (3) collating initial codes into themes, (4) refining themes into main- and subthemes, (5) defining the final themes. Analyses were discussed until consensus was reached on the themes. Data
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