133 Patient’s and parents’ perspective on PROM implementation Parents Parents mentioned many similar experiences with KLIK as patients (Table 3). Themes that were unanimously rated as positive were that KLIK helps in preparing for the consultation and provides insight into the patients’ functioning, although for some parents this insight was also confronting when many problems were reported. In addition, parents were satisfied that by using KLIK problems are detected at an early stage and that support can be provided timely. All other themes were evaluated both positively and negatively. Some parents indicated that they are satisfied with the content of PROMs, as all topics are covered and questions are easy to understand, while other parents disagreed and indicated that questions are hard to understand for their child, are confronting and repetitive. Parents also had mixed opinions regarding ease of use of KLIK, where some thought completing PROMs online is working great, and others thought this could be improved by developing a KLIK app and linking KLIK to the Electronic Health Records (EHR). Furthermore, discussion of the KLIK ePROfile by clinicians always happens according to some parents, but not often enough by even more parents. Most parents mentioned that the conversation content improves as more and different topics are discussed, while some did not recognize this. Completion time is manageable for some, but too long for others and the layout of the KLIK website is attractive and child-friendly according to most parents, but could be made more attractive by using visuals according to some parents. Finally, some parents indicated that they do not see the added value and goal of KLIK, while others disagreed and indicated that KLIK is of great value to the consultation. Questionnaire Overall satisfaction with the KLIK PROM portal Patients and parents reported an overall satisfaction with the KLIK PROM portal of mean = 7.9 and mean = 7.3, respectively, on a VAS ranging from 0 (not satisfied) to 10 (very satisfied). 5
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