Lorynn Teela

142 Chapter 5 the use of the KLIK PROM portal with all stakeholders (including adult patients) to match their needs. In this way, we can further optimize and implement the KLIK PROM portal in clinical care with the ultimate goal to improve the quality of care. Acknowledgements We would like to acknowledge the Dutch National Health Care Institute for their funding. Additionally, we would like to thank all patients and parents of the KLIK panel for participating in the focus groups and/or completing the evaluation questionnaire. Finally, we would like to thank our colleagues for reviewing and Biomedia for sending out the questionnaire. Funding The data collection was supported by the Dutch National Health Care Institute. Conflict of interest The authors declare that they have no conflict of interest. Data availability The datasets generated during and/or analyzed during the current study are available from the corresponding author on reasonable request. Code availability Not applicable Ethics approval All procedures performed in this study were in accordance with the ethical standards of the international and/or national research committee (Medical Ethics Committee of the Amsterdam UMC – W18_023 # 18.034 and Medical Ethics Committee of the Amsterdam UMC – W19_272 # 19.324) and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. Consent to participate Informed consent was obtained from all individual participants included in the study. Keywords Patient Reported Outcomes, Questionnaires, Patient engagement, Pediatrics

RkJQdWJsaXNoZXIy MTk4NDMw