Lorynn Teela

143 Patient’s and parents’ perspective on PROM implementation References 1. Reeve BB, Wyrwich KW, Wu AW, Velikova G, Terwee CB, Snyder CF, et al. ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Quality of Life Research. 2013;22(8):1889-905. 2. Kotronoulas G, Kearney N, Maguire R, Harrow A, Di Domenico D, Croy S, et al. What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials. Journal of Clinical Oncology. 2014;32(14):1480-501. 3. Santana MJ, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Quality of Life Research. 2014;23(5):1505-13. 4. Valderas JM, Kotzeva A, Espallargues M, Guyatt G, Ferrans CE, Halyard MY, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. Quality of Life Research. 2008;17(2):179-93. 5. Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. Journal of Evaluation in Clinical Practice. 2006;12(5):559-68. 6. Basch E, Deal AM, Dueck AC, Scher HI, Kris MG, Hudis C, et al. Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment. JAMA. 2017;318(2):197-8. 7. de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care. 2008;31(8):1521-6. 8. Cheng L, Kang Q, Wang Y, Hinds PS. Determining the effectiveness of using patient-reported outcomes in pediatric clinical practices. Journal of Pediatric Nursing. 2020;55:100-9. 9. Bele S, Chugh A, Mohamed B, Teela L, Haverman L, Santana MJ. Patient-reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review. Frontiers in Pediatrics 2020;8:364. 10. Engelen V, Haverman L, Koopman H, Schouten - van Meeteren N, Meijer-van den Bergh E, VrijmoetWiersma J, et al. Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Education and Counseling. 2010;81(2):235-44. 11. Haverman L, Engelen V, Van Rossum MA, Heymans HS, Grootenhuis MA. Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatrics. 2011;11:3-10. 12. Engelen V, Detmar S, Koopman H, Maurice-Stam H, Caron H, Hoogerbrugge P, et al. Reporting healthrelated quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Pediatric Blood & Cancer. 2011;58(5):766-74. 13. Haverman L, Van Rossum MA, Van Veenendaal M, van den Berg JM, Dolman KM, Swart J, et al. Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics. 2013;131(2):533-43. 14. Haverman L, van Oers HA, Limperg PF, Hijmans CT, Schepers SA, Sint Nicolaas SM, et al. Implementation of electronic Patient Reported Outcomes in pediatric daily clinical practice: The KLIK experience. Clinical Practice Pediatric Psychology. 2014;2(1):50-67. 15. Schepers SA, Sint Nicolaas SM, Haverman L, Wensing M, Schouten van Meeteren AY, Veening MA, et al. Real-world implementation of electronic patient-reported outcomes in outpatient pediatric cancer care. Psycho-Oncology. 2017;26(7):951-9. 16. Teela L, van Muilekom MM, Kooij LH, Gathier AW, van Goudoever JB, Grootenhuis MA, et al. Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice. Quality of Life Research. 2021;30(11):3267-3277. 17. van Oers HA, Teela L, Schepers SA, Grootenhuis MA, Haverman L. A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR). Quality of Life Research. 2020:1-13. 18. Jørgensen K, Rendtorff JD. Patient participation in mental health care–perspectives of healthcare professionals: an integrative review. Scandinavian Journal of Caring Sciences. 2018;32(2):490-501. 5

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