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18 Chapter 1 43. Hsiao, C.-J., Dymek, C., Kim, B., & Russell, B. (2019). Advancing the use of patient-reported outcomes in practice: understanding challenges, opportunities, and the potential of health information technology. Quality of life Research, 28, 1575-1583. 44. Schougaard, L. M. V., Larsen, L. P., Jessen, A., Sidenius, P., Dorflinger, L., de Thurah, A., et al. (2016). AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases. Quality of life Research, 25, 525-534. 45. Aaronson, N., Choucair, A., Elliott, T., Greenhalgh, J., Halyard, M., Hess, R., et al. (2015). User’s guide to implementing patient-reported outcomes assessment in clinical practice. International Society for Quality of Life Research, 2, 1-47. 46. van der Wees, P. J., Verkerk, E. W., Verbiest, M. E., Zuidgeest, M., Bakker, C., Braspenning, J., et al. (2019). Development of a framework with tools to support the selection and implementation of patient-reported outcome measures. Journal of patient-reported outcomes, 3(1), 1-10. 47. Engelen, V., Haverman, L., Koopman, H., Schouten - van Meeteren, N., Meijer-van den Bergh, E., VrijmoetWiersma, J., et al. (2010). Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Education and Counseling, 81(2), 235244, doi:doi:10.1016/j.pec.2010.02.003. 48. Haverman, L., Engelen, V., Van Rossum, M. A., Heymans, H. S., & Grootenhuis, M. A. (2011). Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatrics, 11, 3-10, doi:doi:10.1186/1471-2431-11-3. 49. Engelen, V., Detmar, S., Koopman, H., Maurice-Stam, H., Caron, H., Hoogerbrugge, P., et al. (2011). Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Pediatric Blood & Cancer, 58(5), 766-774, doi:doi:10.1002/pbc.23158. 50. Haverman, L., Van Rossum, M. A., Van Veenendaal, M., van den Berg, J. M., Dolman, K. M., Swart, J., et al. (2013). Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics, 131(2), 533-543, doi:doi:10.1542/peds.2012-0958. 51. Haverman, L., van Oers, H. A., Limperg, P. F., Hijmans, C. T., Schepers, S. A., Sint Nicolaas, S. M., et al. (2014). Implementation of electronic Patient Reported Outcomes in pediatric daily clinical practice: The KLIK experience. Clin Pract Pediatr Psychol, 2(1), 50-67, doi:https://doi.org/10.1037/cpp0000043. 52. Haverman, L., van Oers, H. A., van Muilekom, M. M., & Grootenhuis, M. A. (2019). Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK. Med Care, 57 Suppl 5 Suppl 1, S52-S58, doi:10.1097/MLR.0000000000001061. 53. Proctor, E., Silmere, H., Raghavan, R., Hovmand, P., Aarons, G., Bunger, A., et al. (2011). Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health, 38(2), 65-76, doi:10.1007/s10488-010-0319-7. 54. Proctor, E. K., Landsverk, J., Aarons, G., Chambers, D., Glisson, C., & Mittman, B. (2009). Implementation research in mental health services: an emerging science with conceptual, methodological, and training challenges. Adm Policy Ment Health, 36(1), 24-34, doi:10.1007/s10488-008-0197-4. 55. McCabe, E., Rabi, S., Bele, S., Zwicker, J. D., & Santana, M. J. (2023). Factors affecting implementation of patient-reported outcome and experience measures in a pediatric health system. Journal of patientreported outcomes, 7(1), 1-12. 56. Nilsen, P. (2015). Making sense of implementation theories, models and frameworks. Implement Sci, 10, 53, doi:10.1186/s13012-015-0242-0. 57. Damschroder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci, 4, 50, doi:10.1186/1748-5908-4-50. 58. Antunes, B., Harding, R., Higginson, I. J., & Euroimpact (2014). Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers. Palliative medicine, 28(2), 158-175. 59. Philpot, L. M., Barnes, S. A., Brown, R. M., Austin, J. A., James, C. S., Stanford, R. H., et al. (2018). Barriers and benefits to the use of patient-reported outcome measures in routine clinical care: a qualitative study. American Journal of Medical Quality, 33(4), 359-364.

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