187 Psychometrics of the pediatric PROMIS measures in hemophilia Table 3. Number of completed items, reliability, floor and ceiling effects, and mean scores of the PROMIS pediatric measures Number of items Reliability Floor Ceiling PROMIS pediatric measures Mean Minimum Maximum % % % Mean T-score (σ) N Computerized Adaptive Tests Pain Interference 9.2 3 12 100 39.5 0 42.1 (6.5) 76 Fatigue 11.4 8 12 100 16.2 0 39.9 (7.9) 74 Anxiety 11.6 8 12 100 28.0 0 42.3 (5.9) 75 Depressive Symptoms 10.3 4 12 100 22.7 0 43.9 (7.4) 75 Mobility 11.1 3 12 55.4 0 32.4 52.4 (6.2) 74 Peer Relationships 8.8 5 12 100 0 13.7 49.6 (7.5) 73 Scale Anger 9 9 9 100 9.5 0 43.6 (7.3) 74 Global Health 9 9 9 87.5 0 1.4 50.1 (7.9) 72 Note. Reliability: scores were considered reliable as SE ≤ 4.5. PROMIS, patient-reported outcomes measurement information system. Table 4. Number of completed items, reliability, floor and ceiling effects, and mean scores of the legacy instruments Reliability Floor Ceiling Legacy instruments Version Number of items α % % Μ (σ) N Haemo-QoL Physical Health 8-12 years 7 0.92 30.0 0 16.7 (23.2) 30 13-17 years 7 0.95 43.2 5.4 15.5 (25.9) 37 Haemo-QoL Feeling 8-12 years 7 0.99 60.0 3.3 10.4 (25.7) 30 13-17 years 8 0.97 51.4 5.4 12.9 (26.5) 37 Haemo-QoL Other People 8-12 years 6 0.97 66.7 3.3 9.3 (24.6) 30 13-17 years 6 0.97 56.8 5.4 13.2 (26.7) 37 Haemo-QoL total score 8-12 years 64 0.95 0 0 20.2 (15.4) 30 13-17 years 77 0.98 0 0 24.5 (20.2) 37 PedHAL (total score) 8-17 years 53 0.98 0 44.8 96.5 (9.4) 67 Note. Data of 4 patients (Haemo-QoL 13-17 years) was excluded as these patients experienced technical difficulties during completion. Haemo-QoL, Haemophilia Quality of Life Questionnaire for Children; PedHAL, Paediatric Haemophilia Activities List. 7
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