207 Systematic review PREMs Table 1. Summary of the pediatric patient-reported experience measures No. PREM Name Year and country of origin Type (generic/disease specific) Patient or proxy completion Number of items Number of domains Domain descriptors 1 Child HCAHPS 2015, United States [10] Generic Proxy 62 5 Communication with parent, Communication with child, Attention to safety and comfort, Hospital environment, Global ratings. 2 Children and Young People’s Inpatient and Day Case Survey 2014 2014, United Kingdom [11] Generic Both 74 10 Presence of pain, Pain relief, Overall experience, Involvement in decisions, Communication on arrival, Communication about care and treatment, Communication before operation/ procedure, Communication after operation/procedure, Discharge communication, Advice on post-discharge care. 3 Children’s Revised Humane Care Scale (CRHCS) 2019, Finland [12] Generic Both 41 6 Professional practice, Information and participation in own care, Cognition of physical needs, Human resources, Pain and apprehension management, Interdisciplinary collaboration. 4 Clinician and Group Consumer Assessment of Healthcare Providers and Systems (CG-CAHPS) 2007, United States [13] Generic Proxy 33 N/A N/A 5 Consultation and Relational Empathy measure (CARE) 2004, United Kingdom (Scotland) [14] Generic Both 10 4 Not specified. 6 Consumer Assessment of Health Plan Study (CAHPS) 2.0 Child Core Questionnaire 2014, United States [15] Generic Proxy 7 5 Courtesy and respect of office staff, Helpfulness of office staff, Providers’ communication skills with parents, Respect shown to parents by providers, Providers’ communication skills with children. 7 Consumer Assessment of Health Plans Survey (CAHPS) 2002, United States [16] Generic Proxy 18 9 Getting care quickly, Doctor’s communication; Health plan customer service, Getting prescription medicines, Getting specialized services, Family centred care-shared decision making, Family centred care-getting needed information, Family centred care-personal doctor. 8 Consumer Assessment of the Healthcare Providers and Systems (CAHPS) 2012, United States [17] Generic Proxy 29 9 Care from nurses, Care from doctors, The hospital environment, Experiences in this hospital, Post-discharge overall rating, Understanding care post-discharge, About patient. 8
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