209 Systematic review PREMs Table 1. (continued) No. PREM Name Year and country of origin Type (generic/disease specific) Patient or proxy completion Number of items Number of domains Domain descriptors 19 MPOC-20, MPOC-32, MPOC-56 1996, Canada [28] Generic Proxy 20, 32, 56 5 Enabling and partnership, providing general information, Providing specific information about the child, Coordinated and comprehensive care, Respectful and supportive care. 20 Mind the Gap 2007, United Kingdom [29] Generic Both 22 3 The environment, Care processes, Healthcare provider characteristics. 21 Neonatal Instrument of Parent Satisfaction (NIPS) 1996, Canada [30] Generic (NICU) Proxy 27 N/A N/A 22 NRC Health Patient Survey 2020, United States [31] Generic Proxy 20 N/A N/A 23 P-MISS (Medical Interview Satisfaction Scale) 1986, United States [32] Generic Proxy 23 3 Parent communication and child communication, Parent communication and adherence intent, Distress relief and adherence 24 Parent’s Perceptions of Primary Care (P3C) 2001, United States [33] Generic Proxy 23 6 Continuity of care, Accessibility of care, Contextual knowledge of physicians, Communication skills of physicians, Comprehensiveness of care, Coordination of care. 25 Pediatric Family Satisfaction Questionnaire (PFSQ) 2002, United States [34] Generic Proxy 35 3 Hospital services and accommodation, Nursing care, Medical care 26 Pediatric Family Satisfaction-ICU (pFS-ICU) 2001, United States [35] Generic (ICU) Proxy 24 5 How did we treat your family member (the patient), Symptom management: how well the ICU staff assessed and treated your child’s symptoms, How did we treat you?, Information needs, Process of making decisions. 27 PedsQL - Healthcare Satisfaction Generic Module 2005, United States [36] Generic Both 26 6 Information, Family inclusion, Communication, Technical skills, Emotional needs, Overall satisfaction. 28 Picker Inpatient Survey 1990’s, United States [37] Generic Proxy 35 7 Partnership, Overall care, Physical comfort, Information to parents, Confidence and trust, Continuity and transition, Coordination of care. 8
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