223 Supplement 1 - Overview of the characteristics of included studies No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 1 Krugman, Scott D; Suggs, Adrienne; Photowala, Hasnain Y; Beck, Adam, 2007, USA1 To measure the effects of combining an emergency department and pediatric inpatient unit. Interventional study 18 months General Emergency department and inpatient care units NR NR Press Ganey patient satisfaction survey Patient NR Fair 2 Matziou, Vasiliki; Boutopoulou, Barbara; Chrysostomou, Anthi; Vlachioti, Efrosini; Mantziou, Theodora; Petsios, Konstantinos, 2011, Greece2 To record parental satisfaction with care during hospitalization and assess its determinants. Descriptive, nonexperimental 4 months General Surgical and inpatient care units < 14 206 Swedish Pyramid Questionnaire (Quality of Patient Care Questionnaire - Parents Version) Proxy In-person interview Good 3 Williams, Fiona; McCafferty, Aileen; Dunkley, Colin; Kirkpatrick, Martin, 2018, UK3 To survey patients experiences with epilepsy in the UK. Cross- sectional 12 months Epilepsy Audit units NR (many were 5-15) 2335 “Epilepsy 12”, patient satisfaction experience questionnaire Either the patient and proxy NR Fair 4 Voos, Kristin C; Ross, Gail; Ward, Mary J; Yohay, Anne-Lise; Osorio, Snezana Nena; Perlman, Jeffrey M, 2011, USA4 To evaluate the satisfaction of care providers and parents following practice changes. Quasi- experimental 10 months General NICU Neonates 28 Neonatal Instrument of Parent Satisfaction (NIPS[26]) Proxy Paper and electronic Good 8
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