225 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 9 De Wit M.; Delemarre-van De Waal H.A.; Bokma J.A.; Haasnoot K.; Houdijk M.C.; Gemke R.J.; Snoek F.J., 2008, Netherlands 9 To analyze the effects of discussing healthrelated quality of life (HRQoL) in pediatric patients with type 1 diabetes. Randomized control trial 1 year Type 1 Diabetes Outpatient clinics 13-17 81 Patients’ Evaluation of the Quality of Diabetes Care (PEQ-D) Patient NR Good 10 Cohen, Eyal; Austin, Janice; Weinstein, Michael; Matlow, Anne; Redelmeier, Donald A, 2008, Canada10 To assess quantitatively and qualitatively the care provided to isolated versus non-isolated patients. Prospective observational 3 months General Inpatient unit NR 65 Pediatric Family Satisfaction Questionnaire (PFSQ) Proxy Paper Good 11 Galbraith, Alison A; Semura, Jeanne; McAninchDake, Becky; Anderson, Nancy; Christakis, Dimitri A, 2004, USA11 To determine whether a correlation exists between emergency department use and perceived lags in accessing acute care. Cross- sectional 5 months General Emergency department inpatient unit 10-14 5142 CAHPS Proxy Paper and telephone Good 12 Adams, E Kathleen; Ketsche, Patricia; Zhou, Mei; Minyard, Karen, 2008, USA12 To track patient experience and satisfaction with a new insurance program (PeachCare). Cross- sectional 3 years General Varied ≤18 2089 CAHPS Proxy Paper and telephone Good 8
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