226 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 13 Agra Tuñas, Maria del Carmen; Pérez Várela, Fátima; Bello Rama, Eva; Mato Guerra, Paula; Calviño Vieito, Nuria; Garrudo Díaz, Rubén; Pérez Rivas, Manuela; Rodríguez Núñez, Antonio, 2018, Spain13 To evaluate perceived quality of care in a PICU from the viewpoint of a patient’s relative. Cross- sectional 1 year 1 month General Intensive care unit 1month -16 181/308 EMPATHIC- 30 questionnaire Proxy Paper and electronic Fair 14 Mah, Jean K; Tough, Suzanne; Fung, Thomas; DouglasEngland, Kathleen; Verhoef, Marja, 2006, Canada14 To assess patient responsiveness to PREMs, the association between patient care experience and HRQoL, and whether patient and parent responses differ. Crosssectional 4 months Neurologic diseases Outpatient care 12-18 104 Family Centered Care Survey (FCCS), MPOC20, Give Youth a Voice (GYV) Both the patient and participant NR Good 15 Mason, Sheila L; Chike-Harris, Katherine E; Gyr, Bettina M; Johnson, Emily, 2019, USA15 To evaluate whether implementing a discharge facilitator will improve the discharge process. Retrospective cohort Preintervention: 3 months, Postintervention: 3 months Orthopedic diseases Orthopedic surgery ambulatory clinic (inpatient and outpatient) 8months -18 219 Press Ganey Satisfaction Survey Proxy Electronic Fair
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