230 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 28 Siebes, R C; Wijnroks, L; Ketelaar, M; van Schie, P E M; Vermeer, A; Gorter, J W, 2007, Netherlands28 To assess the stability of the MPOC survey 1 year post implementation. Longitudinal survey 1 year 1 month Chronic diseases Rehabilitation centers (outpatient care) 1-20 205 MPOC-56 Proxy Paper Good 29 Locke, Robert; Stefano, Mariane; Koster, Alex; Taylor, Beth; Greenspan, Jay, 2011, USA29 To assess parental satisfaction with the care provided in the emergency department. Retrospective cohort 6 months General Emergency department outpatient care IQ range 1-10 456 Press Ganey Satisfaction Survey Proxy NR Fair 30 Camilon, P Ryan; Levi, Jessica R; Carrion, Rose A; Josephson, Gary D, 2019, USA30 To identify PREM items that are most closely correlated with the “likelihood of recommending practice”. Retrospective cohort 1 year Otolaryngologic diseases Outpatient care NR 3401 Press Ganey Outpatient Medical Practice Survey NR NR Fair 31 Shaw, K L; Southwood, T R; McDonagh, J E; British Society of Paediatric and Adolescent Rheumatology, 2007, UK31 To document the expectations and satisfaction of parents and patients with their transitional care experiences prior to and following the implementation of a related programme. Cohort NR Juvenile idiopathic arthritis Outpatient care 11-18 308 Mind the Gap Scale Both the patient and proxy NR Good
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