232 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 36 Sng, Qian Wen; Kirk, Angela H P; Buang, Siti Nur Hanim; Lee, Jan Hau, 2017, Singapore36 To assess whether different parental satisfaction scores in a PICU are related to differences in ethnicity and to isolate areas of the PICU that need improvement. Prospective observational 1 year General PICU Median age of 3 206 EMPATHIC- 30 Proxy Paper Good 37 Schreiber, Joseph; Benger, Jennifer; Salls, Joyce; Marchetti, Gregory; Reed, Lindsey, 2011, USA37 To evaluate parental perceptions regarding the amount of FCC exhibited at the rehabilitation facility. Mixed methods NR Neurodevelopmental diseases Rehabilitation centers (outpatient care) 1-26 246 MPOC-20 Proxy Paper Fair 38 Rahi J.S.; Manaras I.; Tuomainen H.; Lewando Hundt G., 2005, UK 38 To consolidate information on the needs and experiences of parents whose children have recently been diagnosed with an ophthalmic disorder. Cross- sectional + qualitative 2 years Ophthalmic disorders Tertiary clinical practice Mean age of 2 147 MPOC-56 Proxy Paper Good
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