235 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 46 Kemp, Kyle A; Ahmed, Sadia; Quan, Hude; Johnson, David; Santana, Maria J,, 2018, Canada46 To illustrate the provincial uptake of the Child HCAHPS survey in Alberta. Cross- sectional 1 year 6 months General Inpatient care unit <17 3389 Child HCAHPS Proxy Telephone Good 47 Kleinsorge, Christy A; Roberts, Michael C; Roy, Kimberlee M; Rapoff, Michael A, 2010, USA47 To determine how well a primary care training facility met primary care standards and how satisfied the patients were with their care. Program evaluation NR General Primary clinical care 2-18 102 (P3C); 105 (CSQ-8) Parent’s Perceptions of Primary Care (P3C); CAHPS 2.0 Child Core Questionnaire Proxy Paper Fair 48 Knapp, Caprice; Madden, Vanessa; Sloyer, Phyllis; Shenkman, Elizabeth, 2012, USA48 To examine the effects of introducing an integrated care system on the patients’ perception of care quality and their satisfaction with their child’s treatment. Quasi- experimental 2 years General Varied 1-21 1727 Consumer Assessment of Health Plans Survey (CAHPS) Proxy Telephone Good 49 Knox V.; Menzies S., 2005, UK49 To record the experiences of families receiving therapy, and their perceptions of their quality of care. Cross- sectional 1 year Cerebral palsy Tertiary clinical care <18 72 MPOC-56 Proxy Paper Good 8
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