236 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 50 Kuo, Dennis Z.; Sisterhen, Laura L.; Sigrest, Ted E.; Biazo, James M.; Aitken, Mary E.; Smith, Christopher E., 2012, USA50 To assess the effects of family centered rounds on improved family experiences and health care utilization. Prospective cohort 1 year 3 months General Inpatient care unit <12 97 Consumer Assessment of Healthcare Providers and Systems measures Proxy Telephone Good 51 Koves I.H.; Boucher A.; Ismail D.; Donath S.; Cameron F.J., 2008, Australia51 To correlate parental or patient satisfaction with better patient outcomes, improved health literacy, and elevated HRQoL. Cross- sectional 2 months Diabetes mellitus Outpatient care 5-18 217 Evaluation of the Quality of Diabetes Care’ (PEQD) Both the patient and the proxy Paper Good 52 Miceli PJ; Clark PA, 2005, USA52 To document the experiences of hospitalized pediatric patients. Retrospective database study 1 year General Inpatient care unit <21 50446 Press Ganey Pediatric Inpatient Survey Proxy Paper Fair 53 Janhunen, Katja; Kankkunen, Päivi; Kvist, Tarja, 2019, Finland 53 To compare the experiences and satisfaction of patients and parents in the emergency department, and to identify key factors that predict satisfaction. Cross- sectional 6 months General Emergency department 7-16 196 Children’s Revised Humane Care Scale (CRHCS) Both the patient and the proxy Paper Good
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