238 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 58 Hall, Allyson G; Landry, Amy Yarbrough; Lemak, Christy Harris; Boyle, Erin L; Duncan, R Paul, 2014, USA58 To assess how patient and parent satisfaction fluctuates with the child’s health status and their prescribed treatment plan. Cross- sectional 3 years General Varied <21 11067 Consumer Assessment of Health Providers and Systems (CAHPS) surveys Proxy Telephone Good 59 Fustino, Nicholas J; Moore, Paige; Viers, Sandy; Cheyne, Ken, 2019, USA59 To increase patient experience care provider scores and assess how improvement efforts impact practice expansion, patient complaint rates, and staff engagement. Prospective interventional study 5 years General Multiclinic children’s hospital (tertiary care, ambulatory practices) NR 11705 Press-Ganey Satisfaction Survey Proxy Paper and electronic Fair 60 Fustino, Nicholas J; Kochanski, Justin J, 2015, USA60 To improve patient satisfaction with care in an outpatient clinic. Quality improvement initiative 2 years Hematology- oncology disorders Outpatient clinic <18 207 Press-Ganey Satisfaction Survey Proxy Paper Fair 61 Davis-Dao, Carol A; Ehwerhemuepha, Louis; Chamberlin, Joshua D; Feaster, William; Khoury, Antoine E; Fortier, Michelle A; Kain, Zeev N, 2020, USA61 To compile a list of factors that predict patient satisfaction in a pediatric urology setting. Cross- sectional 2 years Urologic disorders Urology outpatient clinic NR 3232 NRC Health Patient Survey Proxy Telephone and electronic Good
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