240 Supplement 1 - (continued) No. Author(s), year, country of study Study objective Study design Study duration Disease group Study setting Patients’ age group (yrs) Number of participants completing PREMs PREM used in the study Person completing the survey Administration method Quality score 65 Norman, Shelley Marie; Ford, Tamsin; Henley, William; Goodman, Robert, 2016, UK65 To examine the associations between patientreported outcome measures, practitioner- reported outcome measures, and PREMs. Cohort study 1 year Mental health CAMHS facilities <16 189 Experiences of Services Questionnaire Proxy NR Good 66 Madan, Alok; Sharp, Carla; Newlin, Elizabeth; Vanwoerden, Salome; Fowler, J Christopher, 2016, USA66 To assess patient and parental satisfaction with inpatient psychiatric care and to examine the association between satisfaction of patient outcomes. Cohort study 1 year 9 months Psychiatric disorders Inpatient care unit Adolescents 129 McLean Hospital’s Perception of Care survey Both the patient and proxy NR Good 67 Mah, Jean K; Tough, Suzanne; Fung, Thomas; DouglasEngland, Kathleen; Verhoef, Marja, 2006, Canada67 To collect patient responses to a PREM covering patient satisfaction and FCC, and to see how the responses related to the patients’ HRQoL. Additionally, patient responses were compared to their parents to identify possible discrepancies. Cross- sectional 4 months Neurologic diseases Ambulatory clinic 12-18 104 MPOC-20 ; Give Youth a Voice survey (GYV) MPOC-20 - proxy; GYV - patient NR Good
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