258 Chapter 9 pediatric measures was lower compared to the legacy instruments, resulting in a lower burden of completing PROMs. Part 3: Patient Reported Experience Measures The third part of this thesis focuses on Patient Reported Experience Measures (PREMs). Chapter 8 provided an overview of PREMs currently available for use in pediatrics. A total of 39 different PREMs were identified in the literature, developed in seven countries. Most identified PREMs were generic (87%), which aimed to measure experiences of health care, regardless of disease or department of care. More than half of the PREMs (59%) were designed to be completed by proxy. The number of items included in the different PREMs ranged from 7 to 89, and the number of domains ranged from 3 to 10. Communication (e.g., communication with parent, communication with child, communication about treatment, provider’s communication skills) was the most prominent domain across the different PREMs. The various PREMs developed by Press Ganey (1) were most commonly used, followed by the Measure of Processes of Care (MPOC) (2) and Child HCAHPS (3).
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