Lorynn Teela

40 Chapter 2 References 1. Assembly, U. N. G. (1989). Convention on the Rights of the Child. New York: Convention on the Rights of the Child. 2. Coyne, I. (2008). Children’s participation in consultations and decision-making at health service level: a review of the literature. International journal of nursing studies, 45(11), 1682-1689. 3. van Schelven, F., Boeije, H., Mariën, V., & Rademakers, J. (2020). Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review. Health Expectations. 4. Medical Subject Headings 2020. U.S. National Library of Medicine. https://meshb.nlm.nih.gov/. Accessed 05-01 2020. 5. Harrington, R. L., Hanna, M. L., Oehrlein, E. M., Camp, R., Wheeler, R., Cooblall, C., et al. (2020). Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patientcentered special interest group. Value in Health, 23(6), 677-688. 6. Carman, K. L., Dardess, P., Maurer, M., Sofaer, S., Adams, K., Bechtel, C., et al. (2013). Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Affairs, 32(2), 223-231. 7. Teunissen, G., & Abma, T. (2013). Patients at the negotiating table: exploring appraisal criteria of health research and quality of care used by patient advocacy groups in The Netherlands. European Journal for Person Centered Healthcare, 1(1), 232-239. 8. Jeremic, V., Sénécal, K., Borry, P., Chokoshvili, D., & Vears, D. F. (2016). Participation of children in medical decision-making: challenges and potential solutions. Journal of bioethical inquiry, 13(4), 525-534. 9. Domecq, J. P., Prutsky, G., Elraiyah, T., Wang, Z., Nabhan, M., Shippee, N., et al. (2014). Patient engagement in research: a systematic review. BMC health services research, 14(1), 89. 10. Olszewski, A. E., & Goldkind, S. F. (2018). The default position: Optimizing pediatric participation in medical decision making. The American Journal of Bioethics, 18(3), 4-9. 11. Coyne, I., & Harder, M. (2011). Children’s participation in decision-making: Balancing protection with shared decision-making using a situational perspective. Journal of Child Health Care, 15(4), 312-319. 12. Schalkers, I. (2016). Quality of Paediatric Hospital Care Understanding the Perspectives of Children and Families (Dissertation): Vrije Universiteit Amsterdam. 13. Thompson, J., Barber, R., Ward, P. R., Boote, J. D., Cooper, C. L., Armitage, C. J., et al. (2009). Health researchers’ attitudes towards public involvement in health research. Health Expectations, 12(2), 209-220. 14. Moore, L., & Kirk, S. (2010). A literature review of children’s and young people’s participation in decisions relating to health care. Journal of clinical nursing, 19(15-16), 2215-2225. 15. Munn, Z., Peters, M. D., Stern, C., Tufanaru, C., McArthur, A., & Aromataris, E. (2018). Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC medical research methodology, 18(1), 1-7. 16. Arksey, H., & O’Malley, L. (2005). Scoping studies: towards a methodological framework. International journal of social research methodology, 8(1), 19-32. 17. van Eck, N. J., & Waltman, L. (2010). Software survey: VOSviewer, a computer program for bibliometric mapping. Scientometrics, 84(2), 523-538, doi:10.1007/s11192-009-0146-3. 18. Wilczynski, N. L., McKibbon, K. A., & Haynes, R. B. Search filter precision can be improved by NOTing out irrelevant content. In AMIA Annual Symposium Proceedings, 2011 (Vol. 2011, pp. 1506): American Medical Informatics Association 19. Ouzzani, M., Hammady, H., Fedorowicz, Z., & Elmagarmid, A. (2016). Rayyan-a web and mobile app for systematic reviews. Systematic reviews, 5(1), 210-210, doi:10.1186/s13643-016-0384-4. 20. Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., et al. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. International Journal of Surgery, 88, 105906.

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