Lorynn Teela

63 Scoping review pediatric patient engagement 104. Hein, I. M., Troost, P. W., de Vries, M. C., Knibbe, C. A., van Goudoever, J. B., & Lindauer, R. J. (2015). Why do children decide not to participate in clinical research: a quantitative and qualitative study. Pediatric Research, 78(1), 103-108. 105. Heiney, S. P., Wells, L. M., Coleman, B., & Swygert, E. (1991). “Lasting Impressions: adolescents with cancer share how to cope”--a videotape program. Journal of Pediatric Oncology Nursing, 8(1), 18-23. 106. Hellier, A., Ptak, H., & Cerreto, M. (1986). CATS inside my brain: children’s understanding of the cerebral computed tomography scan procedure. Children’s Health Care, 14(4), 211-217. 107. Hentinen, M., & Kyngas, H. (1996). Diabetic adolescents’ compliance with health regimens and associated factors. International Journal of Nursing Studies, 33(3), 325-337. 108. Hoffman, M. F. (2019). Health-related quality of life instruments for deaf children with cochlear Implants: Development of child and parent-proxy measures. Dissertation Abstracts International: Section B: The Sciences and Engineering, 80(1), No Pagination Specified. 109. Horstman, M., & Bradding, A. (2002). Helping children speak up in the health service. European Journal of Oncology Nursing, 6(2), 75-84. 110. Hsiao, J. L., Evan, E. E., & Zeltzer, L. K. (2007). Parent and child perspectives on physician communication in pediatric palliative care. Palliative & Supportive Care, 5(4), 355-365. 111. Huby, K., Swallow, V., Smith, T., & Carolan, I. (2017). Children and young people’s views on access to a web-based application to support personal management of long-term conditions: a qualitative study. Child: Care, Health & Development, 43(1), 126-132. 112. Huijer, H. A.-S., Sagherian, K., Tamim, H., Khoury, M. N., & Abboud, M. R. (2013). Quality of palliative care in children with cancer in Lebanon. Lebanese Medical Journal, 103(888), 1-9. 113. Hutton, A. (2005). Consumer perspectives in adolescent ward design. Journal of Clinical Nursing, 14(5), 537-545. 114. Ingersgaard, M. V., Tulstrup, M., Schmiegelow, K., & Larsen, H. B. (2018). A qualitative study of decisionmaking on Phase III randomized clinical trial participation in paediatric oncology: Adolescents’ and parents’ perspectives and preferences. Journal of Advanced Nursing, 74(1), 110-118. 115. Jamalimoghadam, N., Yektatalab, S., Momennasab, M., Ebadi, A., & Zare, N. (2019). How Do Hospitalized Adolescents Feel Safe? A Qualitative Study. Journal of Nursing Research, 27(2), e14. 116. Jamalimoghadam, N., Yektatalab, S., Momennasab, M., Ebadi, A., & Zare, N. (2019). Hospitalized adolescents’ perception of dignity: A qualitative study. Nursing Ethics, 26(3), 728-737. 117. Jedeloo, S., van Staa, A., Latour, J. M., & van Exel, N. J. (2010). Preferences for health care and selfmanagement among Dutch adolescents with chronic conditions: a Q-methodological investigation. International Journal of Nursing Studies, 47(5), 593-603. 118. Jelbert, R., Stedmon, J., & Stephens, A. (2010). A qualitative exploration of adolescents’ experiences of chronic fatigue syndrome. Clinical Child Psychology & Psychiatry, 15(2), 267-283. 119. Jeschke, S., Woltermann, S., Neininger, M. P., Pauschek, J., Kiess, W., Bertsche, T., et al. (2020). Interviews with patients aged 6-17 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis. Acta Paediatrica, 18, 18. 120. Jiang, I., Major, G., Singh-Grewal, D., Teng, C., Kelly, A., Niddrie, F., et al. (2021). Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study. BMJ Open, 11(1), e039670. 121. Jibb, L. A., Cafazzo, J. A., Nathan, P. C., Seto, E., Stevens, B. J., Nguyen, C., et al. (2017). Development of a mHealth real-time pain self-management app for adolescents with cancer: An iterative usability testing study. Journal of Pediatric Oncology Nursing, 34(4), 283-294. 122. Johnson, S., Sidelinger, D. E., Blanco, E., Palinkas, L. A., Macdonald, D., & Reznik, V. (2008). Ethnic differences and treatment trajectories in chronic kidney disease. Journal of Health Care for the Poor & Underserved, 19(1), 90-102. 123. Jolley, J. (1992). Parent and child views of an ENT ward. Nursing Standard, 6(34), 25-27. 124. Jones, F. C., & Broome, M. E. (2001). Focus groups with African American adolescents: enhancing recruitment and retention in intervention studies. Journal of Pediatric Nursing, 16(2), 88-96. 2

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