70 Chapter 2 250. Stegenga, K., & Ward-Smith, P. (2008). The adolescent perspective on participation in treatment decision making: a pilot study. Journal of Pediatric Oncology Nursing, 25(2), 112-117. 251. Stegenga, K., & Ward-Smith, P. (2009). On receiving the diagnosis of cancer: The adolescent perspective. Journal of Pediatric Oncology Nursing, 26(2), 75-80. 252. Stevens, B., McKeever, P., Law, M. P., Booth, M., Greenberg, M., Daub, S., et al. (2006). Children receiving chemotherapy at home: perceptions of children and parents. Journal of Pediatric Oncology Nursing, 23(5), 276-285. 253. Stevens, M. S. (1988). Benefits of hospitalization: the adolescent’s perspective. Issues in Comprehensive Pediatric Nursing, 11(4), 197-212. 254. Stewart, J. L., Lynn, M. R., & Mishel, M. H. (2005). Evaluating content validity for children’s self-report instruments using children as content experts. Nursing Research, 54(6), 414-418. 255. Sutters, K. A., Savedra, M. C., Miaskowski, C., Holdridge-Zeuner, D., Waite, S., Paul, S. M., et al. (2007). Children’s expectations of pain, perceptions of analgesic efficacy, and experiences with nonpharmacologic pain management strategies at home following tonsillectomy. Journal for Specialists in Pediatric Nursing: JSPN, 12(3), 139-148. 256. Taylor, S., Haase-Casanovas, S., Weaver, T., Kidd, J., & Garralda, E. M. (2010). Child involvement in the paediatric consultation: a qualitative study of children and carers’ views. Child: Care, Health & Development, 36(5), 678-685. 257. Taylor, S., McLean, B., Parsons, R., Blair, E., Carey, L., Valentine, J., et al. (2016). Clinical acceptability of the SENSe assess kid: Children and youth perspectives. Developmental Medicine and Child Neurology, 58, 62-63. 258. Tenniglo, L. J. A., Loeffen, E. A. H., Kremer, L. C. M., Font-Gonzalez, A., Mulder, R. L., Postma, A., et al. (2017). Patients’ and parents’ views regarding supportive care in childhood cancer. Supportive Care in Cancer, 1-10. 259. Tercyak, K. P., Johnson, S. B., & Schatz, D. A. (1998). Patient and family reflections on the use of subcutaneous insulin to prevent diabetes: a retrospective evaluation from a pilot prevention trial. Journal of Diabetes & its Complications, 12(5), 279-286. 260. Tong, A., Jones, J., Speerin, R., Filocamo, K., Chaitow, J., & Singh-Grewal, D. (2013). Consumer perspectives on pediatric rheumatology care and service delivery: a qualitative study. JCR: Journal of Clinical Rheumatology, 19(5), 234-240. 261. Trace, S. L., Collinson, A., Searle, A. J., & Lithander, F. E. (2020). Using videoconsultations to deliver dietary advice to children with chronic kidney disease: a qualitative study of parent and child perspectives. Journal of Human Nutrition & Dietetics, 33(6), 881-889. 262. Travlos, V., Bulsara, C., Patman, S., & Downs, J. (2016). A fine balance and a shared learning journey: Exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders. Neurorehabilitation, 39(4), 519-534. 263. Ullan, A. M., Belver, M. H., , F., ez, E., Serrano, I., Delgado, J., et al. (2012). Hospital designs for patients of different ages: Preferences of hospitalized adolescents, nonhospitalized adolescents, parents, and clinical staff. Environment and Behavior, 44(5), 668-694. 264. Unguru, Y., Sill, A. M., & Kamani, N. (2010). The experiences of children enrolled in pediatric oncology research: implications for assent. Pediatrics, 125(4), e876-e883. 265. Van Niekerk, A., Jacobs, R., Hornsby, N., Singh-Adriaanse, R., Sengoelge, M., & Laflamme, L. (2020). Enablers of psychosocial recovery in pediatric burns: perspectives from the children, parents and burn recovery support staff. BMC Pediatrics, 20(1), 289. 266. van Staa, A., Jedeloo, S., Latour, J. M., & Trappenburg, M. J. (2010). Exciting but exhausting: experiences with participatory research with chronically ill adolescents. Health Expectations, 13(1), 95-107. 267. van Staa, A., & On Your Own Feet Research, G. (2011). Unraveling triadic communication in hospital consultations with adolescents with chronic conditions: the added value of mixed methods research. Patient Education & Counseling, 82(3), 455-464. 268. Vaz, L. M., Eng, E., Maman, S., , T., u, T., & Behets, F. (2010). Telling children they have HIV: lessons learned from findings of a qualitative study in sub-Saharan Africa. AIDS Patient Care & Stds, 24(4), 247-256.
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